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Robotic Surg, AUS, Rad Ther., HT, Med/Asian Diet, Constant vigorous exercise

ob66
Posts: 218
Joined: Apr 2010

I have done it all. Started with daVinci in June 2009. Had AUS in June 2010, then RT in July/Aug 2010, and RT since May 2010. Have been off Lupron since my last shot in January 2012.

So now it is time for my first PSA test after going off Lupron totally (all PSAs while on Lupron were less than 0.01). I feel great physically and mentally, but have the boogey man in the back of my head. You feel very safe when on what I called a Lupron vacation. Now that safety net is gone. So it will be very interesting to see the results. I have done everything to fight this horror, and I hope my body has taken over. I feel very positive, but not cocky, and choose to post before any results are in. The results will speak for themselves, but I know that I am fighting the good fight. When you speak after the fact you can attribute certain things to your success/failure, and so I choose to let you know before and then report in January. At this time it still remains an intellectual exercise/battle to me, and no matter what the PSA results the battle will continue, but for all of you I hope I can report that by doing what I have done is successful.

ob66
Posts: 218
Joined: Apr 2010

Correction: In line 2 it should be "HT" since May 2010.

mrspjd
Posts: 693
Joined: Apr 2010

Ob,

I understand all too well where you and Judy are "mentally," especially after PJD finished txs and later discontinued ADT3. If PJD or I can be helpful/supportive to you in any way, please email us. You've done everything right & maintained such a positive & hopeful perspective, all the while grounded in the reality of this insidious disease as an educated patient. Your feedback to me after PJD's dx was so helpful and very much appreciated.

I know you'll do well, no matter what the future may bring. Warm regards and all the very best to you & Judy.

mrs pjd

ob66
Posts: 218
Joined: Apr 2010

Such support on this board, for which I am soooo thankful. To all of you, a big thank you. The whole reason I posted when and as I did, is that I am hopeful (aren't we all hopeful) that my upcoming results will be positive (meaning negative). But as involved as each of us is here, you can all feel my fears. Were I to come on after I posted positive results in January, all of you could think "Lucky guy, isn't that great, congrats, etc., etc., etc., ", but by posting before the fact in advance to some extent puts your mind in my battle, for you all know it so well.

So if my results are good, hopefully it speaks tons for everything from AUS, to HT, to IMRT combined with daVinci, and also my biggee, diet and exercise. I am but one, but the whole concept of diet and exercise in the fight against PCa is still years behind in the medical world of acceptance. I fully realize, having been a dentist for 36 years, that one case does not make any type of a conclusion, but one case is how thought processes are challenged, or confirmed, or even denied. As with us all, we have but one life to lead, to share. So I will share my angst in advance, and in hopes that anything I say after the fact is a bit more meaningful.

More importantly, thank you all. This is one great resource, but greater than that, one comfortable place to hang out. As you go through process, you just hope you help someone along the way like others that have helped me. To the continuous posters helping all who come aboard, you are great. Namely in my case: mrspjd, Kongo, Trew, Vasco and many others in lesser ways. Thanks and I will be reporting.

ob66
Posts: 218
Joined: Apr 2010

Such support on this board, for which I am soooo thankful. To all of you, a big thank you. The whole reason I posted when and as I did, is that I am hopeful (aren't we all hopeful) that my upcoming results will be positive (meaning negative). But as involved as each of us is here, you can all feel my fears. Were I to come on after I posted positive results in January, all of you could think "Lucky guy, isn't that great, congrats, etc., etc., etc., ", but by posting before the fact in advance to some extent puts your mind in my battle, for you all know it so well.

So if my results are good, hopefully it speaks tons for everything from AUS, to HT, to IMRT combined with daVinci, and also my biggee, diet and exercise. I am but one, but the whole concept of diet and exercise in the fight against PCa is still years behind in the medical world of acceptance. I fully realize, having been a dentist for 36 years, that one case does not make any type of a conclusion, but one case is how thought processes are challenged, or confirmed, or even denied. As with us all, we have but one life to lead, to share. So I will share my angst in advance, and in hopes that anything I say after the fact is a bit more meaningful.

More importantly, thank you all. This is one great resource, but greater than that, one comfortable place to hang out. As you go through process, you just hope you help someone along the way like others that have helped me. To the continuous posters helping all who come aboard, you are great. Namely in my case: mrspjd, Kongo, Trew, Vasco and many others in lesser ways. Thanks and I will be reporting.

caseyh
Posts: 63
Joined: May 2002

My experience is that the rate & degree that PSA drops is indicative of the severity of the disease and the period of time HT will be effective. In other words, A PSA reading of less than 0.01 is optimal and the quicker the disease responds to HT the better. Achieving undetectable PSA within 12 to 24 months is a positive sign. I started HT in March of 2004 and had my last Zoledex shot in Nov. 20004. My PSA dropped to less than 0.01 and remained there for a full 24 months before it began to rise once again. Based on my experience and educating myself about PCa for the past 12+ years, my best guess is that you can expect similar results. Enjoy your vacation!

Good Luck.

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Ob,

I appreciate your anxiety at this point. You've done everything I think an informed patient can do. Here's wishing you future good numbers!

K

hopeful and opt...
Posts: 1357
Joined: Apr 2009

As a warrior you have, and are fighting the fight.

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