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Forgetfulness, inability to put my thoughts into words..

cinreag
Posts: 154
Joined: Oct 2012

Does anybody know of any foods or supplements that will help with bad memory and inability to express your thoughts?

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

is supposed to help, I prefer to get mine by eating fish a couple times or more a week, but I think they come in capsules. I'm sure there are other things that I don't know about, but others will chime in.
Here's to a better memory,
Winter Marie

cinreag
Posts: 154
Joined: Oct 2012

Thank you.

cinreag
Posts: 154
Joined: Oct 2012

Hi Winter Marie. I had to disappear for a few, Im on a phone and it was giving me problems. What kind of fish do you eat to get the good fish oil?

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

Is my fish of choice, tuna is good but I worry about mercury from it, so only eat it once a month, I also eat tapia fish and halibut, but I believe that salmon is best and I have no scientific basis for this other then my mother is half Alaskan Native and my grandmother full and I was raised in Alaska, and they taught me that salmon had a good amount of fish oil, halibut a second. But that may have been for my region.
Winter Marie

cinreag
Posts: 154
Joined: Oct 2012

Would you care to share some pointers on how you prepare it? I love salmon patties made from canned salmon. Would that be a good way to get salmon into my diet? By the way, Im Cindy.

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

My favorite way to prepare salmon (by the way salmon patties are my son's and my top 5 ways to eat salmon) is to grill it, I take two layers of tin foil lay the salmon on it, take a lemon and squeeze half onto the salmon, then Morton's seasoning salt and sprinkle over salmon, chop a sweet onion and add that on top, fold foil over, but on grill for 20 minutes check and see if it flakes, if not keep checking every 5 minutes, I do this in winter and summer. I save some of the onion, mince it, add chopped dill pickles, squeeze the other half of lemon on that, add some mayonnaise and stir which provides me with tarter sauce.
And yes canned salmon and salmon patties are a great way to get the benefits from it as well.
Oh, by the way, you can do the same thing to the salmon in the oven at 350 , just put the foil wrapped salmon on a baking sheet.
Winter Marie

cinreag
Posts: 154
Joined: Oct 2012

Great. Thank you so much.

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Salmon is one of my favorite fish especially for sashimi and sushi. When I do cook it, my preferred method is smoking. When I do that I get several large filets and smoke enough to last most people a month (me about three days!) I like hard smoke (what we grew up calling Indian Candy) as opposed to gravlax or soft smoked. I also make a pretty good salmon thermidor and Hawaiian Lomi Lomi salmon which is "cooked" by first curing with salt and then marinating in citrus juice.

Ray/Doc

cinreag
Posts: 154
Joined: Oct 2012

Hawaiian lomi lomi salmon marinated in citrus juice. Sounds yummy.

thxmiker's picture
thxmiker
Posts: 1213
Joined: Oct 2010

Cinnamon, Potassium, Gingko Bilboa, and Fish Oil was already said.

Juicing for Life is a great reference for foods that sooth and help heal the body. One can eat or juice to get the nutrition.

The Anti-Cancer Diet is another good book about how we can assist the body to heal, and the inspiring treatments that are coming. (Written by a Neural Surgeon whom went through Cancer.)

I got both books on ebay for under $10 each w/shipping.

Best Always, mike

PS I take all but Ginko.

cinreag
Posts: 154
Joined: Oct 2012

Thank you for the response. Will def check into the books and the supplements tomorrow. Lucky for me I like to read!!

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

If you are on chemo, depending which one, you tend to get potassium loss, I have a bottle of pills prescription from my onc when it got to bad (I knew when the cramping of muscles would get bad) and take them for a couple of days, because the loss was too much for bananas to help. But I notice after getting my potassium back up and eating a banana a day since then, I haven't had a potassium problem. My belief (and this is only my belief) is that I prefer as much as possible to get my supplements (fish oil, potassium , vitamin D , etc) when possible from natural foods then supplements in the pill form, I believe the body absorbs it better, Mike does the same for the most part I think?
Winter Marie

cinreag
Posts: 154
Joined: Oct 2012

I'm not taking chemo. I havent been in treatment for 2 years.

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

I read an article in Chemo Magazine about two years ago that said milk and coffee are both good to counter the effects of chemo-brain. Salmon and Halibut are both rich in Omega-3, the fish oil that helps.

cinreag
Posts: 154
Joined: Oct 2012

Wow. I can tell joining this site sure is going to be one of my smarter moves, already. You guys are great. I was the first person in my family to ever be diagnosed with cancer. I can tell just by reading the few blogs and posts that I have read that I did not ask near enough questions about my illness or the treatments. My mother and dad went to my first several onc/chemo appointments with me but they had no idea what questions to ask either.

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

You mentioned an inability to put thoughts into words in your header. When I was was first dx'd I was in grad school and the classes involve sitting around a table and discussing that week's reading. Many times after I started on chemo I would have the word I wanted to say perfectly clear in my head, could even write it down but just could not get it to come out of my mouth until someone else said. I rather imagined that was something that a person with a bad stutter would feel like as you struggled to get a word out. I'd start saying "bean town, Paul Revere's ride, the Big Dig!) just because I couldn't say the word Boston. It still happens sometimes but it's not as bad as I've learned to sneak up on words by a back door approach.

cinreag
Posts: 154
Joined: Oct 2012

Doc_Hawk you just described it to a T!!!! I know exactly what I am wanting to say but always 1 word will get me hung up. I just have to wait for whomever Im talking with to supply the word to get me going again. Never thought about it before but a stutterer probably does know exactly how I feel. Hopefully this can be reversed. I have already started exercising my brain some. I could stand to step that up a little (or a lot).

cinreag
Posts: 154
Joined: Oct 2012

Doc_Hawk you just described it to a T!!!! I know exactly what I am wanting to say but always 1 word will get me hung up. I just have to wait for whomever Im talking with to supply the word to get me going again. Never thought about it before but a stutterer probably does know exactly how I feel. Hopefully this can be reversed. I have already started exercising my brain some. I could stand to step that up a little (or a lot).

cinreag
Posts: 154
Joined: Oct 2012

Hmmm.... will have to have "sneaking up on words by a back door approach" explained to me. My guess would be one of two possible meanings 1) talk very slowly or 2) try to talk very fast and get your words out before your brain has a chance to forget. But I would be interested in hearing what your meaning is.

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

The back door (as I call it) can be different methods to get at that elusive word. If it's a word that's easily rhymed, you can start with other words. For example, if I'm having trouble saying "I need to put my boots on" I might rely on what's known as Cockney market language in England. I'll start with something like whistle and flutes, Daisy roots, cowboy boots to get at it. Or if there's a synonym as in the case of boots, I can just say shoes. In my previous example of Boston, I might just settle for calling it Bean Town.

And like Danker suggested, puzzles are a great help. I kick start my noggin every morning with a crossword puzzle, a Sudoku and a couple of games of Mahjongg to help get the mental juices flowing.

After a while, your body can get used to chemo and the effect of chemo-brain may wear off a bit. It's been some time since I've "lost" a word. In the meantime, try to have a little bit of fun with it. A few months ago when my thinking would get a bit strange I started getting philosophical about Dr. Suess and had a great time with it and it helped to exercise the brain.

cinreag
Posts: 154
Joined: Oct 2012

Guess you might as well try to have fun with it, if its something you are going to have to live with anyway.

ketziah35
Posts: 1145
Joined: Jun 2010

It is called chemobrain in various places. My mom ended chemo in2010. Chemo brain is a mainstay now along with neurapothy. She has a reflexologist to help with that.

cinreag
Posts: 154
Joined: Oct 2012

I was told to expect it during treatment but I expected it would go away after stopping treatment. This site is going to be an insanity savior for me. I may even start realizing that Im not crazy after all. I literally knew nobody that had dealt with cancer and therefore had nobody I could talk to who was actually going through the same things I was.

cinreag
Posts: 154
Joined: Oct 2012

I was told to expect it during treatment but I expected it would go away after stopping treatment. This site is going to be an insanity savior for me. I may even start realizing that Im not crazy after all. I literally knew nobody that had dealt with cancer and therefore had nobody I could talk to who was actually going through the same things I was.

cinreag
Posts: 154
Joined: Oct 2012

My phone was acting up and I ended up posting the same comment many times. Do not see a way to delete the extras.

cinreag
Posts: 154
Joined: Oct 2012

I was told to expect it during treatment but I expected it would go away after stopping treatment. This site is going to be an insanity savior for me. I may even start realizing that Im not crazy after all. I literally knew nobody that had dealt with cancer and therefore had nobody I could talk to who was actually going through the same things I was.

cinreag
Posts: 154
Joined: Oct 2012

I was told to expect it during treatment but I was expecting it to go away after stopping treatment. This site is going to be such a help to me. My family had never been touched by cancer. We knew next to nothing about it. I dint know anyone who has been through this so therefore I havent been able to talk to people who actually knew what I was going through. My family members are happy tgat I have found this site.

cinreag
Posts: 154
Joined: Oct 2012

I was told to expect it during treatment but I was expecting it to go away after stopping treatment. This site is going to be such a help to me. My family had never been touched by cancer. We knew next to nothing about it. I dint know anyone who has been through this so therefore I havent been able to talk to people who actually knew what I was going through. My family members are happy tgat I have found this site.

cinreag
Posts: 154
Joined: Oct 2012

I was told to expect it during treatment but I was expecting it to go away after stopping treatment. This site is going to be such a help to me. My family had never been touched by cancer. We knew next to nothing about it. I dint know anyone who has been through this so therefore I havent been able to talk to people who actually knew what I was going through. My family members are happy tgat I have found this site.

cinreag
Posts: 154
Joined: Oct 2012

Triple triple post

cinreag
Posts: 154
Joined: Oct 2012

I was told to expect it during treatment but I was expecting it to go away after stopping treatment. This site is going to be such a help to me. My family had never been touched by cancer. We knew next to nothing about it. I dint know anyone who has been through this so therefore I havent been able to talk to people who actually knew what I was going through. My family members are happy tgat I have found this site.

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

My neighbor boy was at home as I came out of my house, and I saw he had been in the water and asked him he had fun going, "um, the, the, uh", and he asked are you okay? And I said, yes, I'm just trying to think of the word for that thing in your truck", and he said, "yes, I went surfing", I couldn't think of what a surfboard was called although I live in surf fun loving Santa Cruz, see my neighbor boy (he's like a second son)off to go surfing all the time, the word surfing and surf board just couldn't surface in my brain, and I know surfboarding well. It only happens occasionally with me now, but I do hate when it happens.
Winter Marie

cinreag
Posts: 154
Joined: Oct 2012

That sounds really familiar!!! I get frustrated and then badly embarrassed when people just quietly look at me and sit and wait for me to finally find the word Im searching for. Its like Im about ready to make me a flash card that I can hold up that says "help me out here cant think of my word"!!!!

cinreag
Posts: 154
Joined: Oct 2012

Chemobrain still trying to figure out what to do when my phone is locked up and wont let me post my replies. Guess I have just learned that you dont keep hitting the post comment button!!!

danker
Posts: 735
Joined: Apr 2012

try doing crossword puzzles. And make sure you find the answers for the words you didn't know! This will improve your vocabulary. If you cannot say the word you want, perhaps a synonym for it will come out. I often need to do this since I cannot spell worth a damn. GOOD LUCK

danker
Posts: 735
Joined: Apr 2012

try doing crossword puzzles. And make sure you find the answers for the words you didn't know! This will improve your vocabulary. If you cannot say the word you want, perhaps a synonym for it will come out. I often need to do this since I cannot spell worth a damn. GOOD LUCK

cinreag
Posts: 154
Joined: Oct 2012

Thanks for the tip!!

Annabelle41415's picture
Annabelle41415
Posts: 4231
Joined: Feb 2009

One thing helpful is rest but you probably already know that. Chemo fog is so bad that I'm not sure anything helps and I'm sorry that you are experiencing this. You really don't point out what stage of the game you are in as far as treatment or post or pre so if you could give us a little bit more info we might be able to help more. Hope you are feeling better.

Kim

cinreag
Posts: 154
Joined: Oct 2012

Hi, Kim. My information is limited. I was very sick and hospitalized 3 different times from march-may 2010. I finally srarted doctoring with a colon dr. who was convinced I had crohns. The meds never made any difference. He finally ordered exploratory surgery, during which they found a tumor in my small intestine. This was removed. I was alone in the hospital when the Dr came in and told me it was malignant and I had a very rare form of cancer. Needless to say even being on morphine I was shocked. An onc was called in, he immediately ordered a port placement, which I refused. I told the docs and my family I needed to rhink some. Anyway the onc set me up for a 2nd opinion at a major hospital in Indianapolis. I was told I needed at least 6 months of chem. There was a 50/50 chance of this cancer coming back to liver or abdomen. The doc stated specifically that if it came back "there will be no cure".My two sisters who were with me started to cry. The doc said if I take this 6months of chemo my chances would improve 20%. I said ok to the treatment. Took the infusions at the infusion center, came home hooked on a pump which infused me 24hrs a day for 2(?) days. I stopped chemo after 1month. The 20% better chance wasnt worth the other things going wrong from the chemo. Got sick again in Feb 2011. Had a second expkoratory, nothing found. Thats been almost 2 years ago. Just came out of a rough couple of two months where,my digestive system was constantly in an uproar with awful bad stomach pain. Now the last week I couldnt feel any better. Feel fine except for my brain fog that just wont clear up. I stutter and stammer and I get very nervous easily. Thats my background. My next bloodwork is due in Nov. Even though I went against my onc suggestion, he still keeps an eye on me. I hope this comment isnt full of misspelled words. Im on a phone and its crazy!! Cant proofread this article because my husband is pacing the floir waiting on me to ride to town with him.

Annabelle41415's picture
Annabelle41415
Posts: 4231
Joined: Feb 2009

Thanks for the information and it sure sounds like you have been through a lot. Ultimately the decision to have treatment or not is up to you and glad that your doctor is still seeing you. Glad that you are feeling better too. I'm still having problem forgetting things or the words not coming out right. Hope it gets better for you soon.

Kim

cinreag
Posts: 154
Joined: Oct 2012

I thought the Mets to liver or abdomen were specific to small intestine cancer but from what Ive been reading it seems most cancers do move on to the liver. I really know next to nothing about my sickness. It seems I didnt ask enough questions. I have no idea what kind of chemo I was taking. I feel so lucky to be doing as good as I am. You know I never heard if the cancer was in a certain stage. I do know they tested 25 lymphnodes and 2 tested positive for cancer. The Dr in Indy told my sisters & I that he wasnt too concerned about that. Thank you for the good wishes. Everybody has been so helpful.
~Cindy

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 445
Joined: May 2012

I start talking and can't get out what I'm trying to say. Stammering, part words. So frustrating, makes me not want to talk in front of people.
Sandy :)

Helen321's picture
Helen321
Posts: 750
Joined: May 2012

I'm trying the top 50 best things to eat when you have cancer. There are whole websites that talk about foods to eat and foods to avoid and why. You can google what to eat during cancer. What to avoid during cancer. I haven't figured it all out myself but my plate has become very colorful lately and I've discovered the joy of crockpot cooking in the last two weeks. The brighter foods are supposed to be the best. The challenge is to figure out how to eat them without sabotaging the chemo progress.

I've become a great source of entertainment for my kids since I've been mixing up words or saying okay wait a minute, the words in there . . . . .[play jeopardy music] . . . and then everyone pops out words and I say no not that one, no that's not it and finally I find the word. I don't really like fish which is an issue. I've increased my tuna fish intake to once a week. Canned salmon is actually recommended on the websites. It has to be wild. I bought the canned salmon but have yet to try it. I read that the canned salmon is just as good as fresh store bought for its nutritional value.

cinreag
Posts: 154
Joined: Oct 2012

I will start looking into some of these Web sites. Dont know why I never thought of it before. And I will certainly add more salmon, tuna to my diet. Have had a couple of books recommended. Lots of new info for me to check out. I hate it that you all are going through this chemobrain stuff but Im glad to find out Im not the only one. I literally know no one else, closely enough, to ask these questions. My family has been very lucky in the fact that we hadnt had cancer touch us personally until me.

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

In my family, I'm also the first and hopefully the last. I've had step-cousin's, in-laws, etc., but never flesh and blood (until myself) have any cancer, so you never think it's going to happen to you, and who the heck ever heard of colon cancer; until it strikes? Not me.
Which means this colon cancer board has been so wonderful, insightful, and many here are like family to me since finding it, and learning from all the helpful information that I have discovered from their experiences.
It's always nice to know we are not alone,that there are good people out here willing to share their experiences with us and that's as Martha Stewart would put it; "is a good thing"
Winter Marie

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