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Hope every other cancer patient has a day as good as mine!

seatown's picture
seatown
Posts: 242
Joined: Sep 2012

Just had to share my latest news because I'm still elated, hours later, & I think my news shows there's reason for hope. Today my doc told me that the benchmark CA 125 cancer marker is down from 803 a month ago to . . . (drum roll) 173!!! Still a long way from the normal healthy range of 1-30, but what a big improvement over the 2,700+ number when I was diagnosed in July! I'm elated! The oncologist also said any mass in my abdomen is virtually undetectable via palpation, which is a continuation of the promising results of the last PET scan.

I'm still anemic, but not too anemic for chemo today. Also not in need of the drug Neulasta, which I was told is routinely given to chemo patients to fight infection. I've been blogging at www.CaringBridge.org/visit/CaroleSeaton if you're interested in the details.

BellaandD
Posts: 8
Joined: Aug 2012

I found alot of encouragment reading every ones posts, was diagnosed this May with PPC stage IV.
It is great news and may you continue to do well.
Deb

seatown's picture
seatown
Posts: 242
Joined: Sep 2012

I appreciate your good wishes. I'm aware it's early in my disease & there are no doubt many twists & turns on the road ahead. But after feeling so awful from my symptoms April-June, then facing the shock in July of being diagnosed with a disease I read in one source had "100% morbidity," & then fearing the chemotherapy regimen--I'm very happy now to be feeling so well. Thanks again, & good luck to you!

JulieL's picture
JulieL
Posts: 141
Joined: Jan 2012

So thrilled for you. Yes - it doesn't pay to read the depressive internet descriptions of our disease. Keep up the good work and keep smiling. I believe a happy positive attitude works wonders and it certainly makes you feel better. I am getting close to 12 months since diagnosis with PPC and that in itself will be a milestone. One day, one week, one month, one year at a time!

Love, Julie

Tina Brown's picture
Tina Brown
Posts: 1054
Joined: Nov 2009

Your drop in numbers is amazing and you should be celebrating. The 100% morbidity is wrong. I have a friend who I met through our mutaul PPC condition. She was diagnosed 5 years ago and is in complete remission. The hospital have discharged her and her oncologist promounced that she was CURED. Her numbers were 17. She only ever needed 1 round of Carbo/taxol where her numbers dropped to below 30. They have always been in the low teens at her every check up and she has remained healthy and well.

So yes, I know someone who has been cured of PPC :)

Tina xxxx

seatown's picture
seatown
Posts: 242
Joined: Sep 2012

I appreciate your encouraging words. Yes, Julie, I agree that a positive attitude makes a difference. I never thought of myself as much of a Pollyanna, but in these circumstances I've decided optimistic is the only way to be. Tina, I know you're right that a lot of what one finds on the web may be wrong or out of date.

Both my family & my medical team have been trying to keep me from dwelling too much on the negative info I find. And I'm trying not to obsess too much about the numbers. But when I think back to my reaction to my oncologist's original July report of a CA125 marker of 2,700+, then compare it to my reaction this week when the number was 173, I find my optimism hard to contain.

Thanks again for your comments!

PatsieD
Posts: 100
Joined: Jun 2012

I was so pleased for you. It's really great news. This journey can be a rollercoaster can't it.

westie66's picture
westie66
Posts: 642
Joined: Jun 2010

That is wonderful news. May we all have news like that soon!
Cheryl

seatown's picture
seatown
Posts: 242
Joined: Sep 2012

Thank you, Patsie & Cheryl. I appreciate the kind words. (LOVE the Westie!)

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