First post, and loaded. My mom, Becky, amazing, vivacious, loves life and retirement... struck down just over a year ago with "unspecified" abdominal cancer. Six rounds of chemo after debulking found her in remission. Two and a half months ago her CA-125 went from 9.6 to over 1600 in less than 3 months and CAT scan found questionable "fluff" in her abdomen.
Now stage IV primary peritoneal cancer. On top of all this, mom has a "seizure disorder" (for the past 46 years... happy birthday from me).. Stress seems to bring them on, so you can imagine what the woman has been through. CA-125 this week was up to over 1900... what is a high number, what does it mean?! She is in CT, I'm in VT and can only get there for every other chemo treatment/appointment with oncologist.
I apologize for not reading everything on this page first... from what I have read this place is full of compassionate people who may be able to offer a place to start my search.
Thank you for reading this.