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My breast is incredibly sore - still waiting for my biopsy result - meet with surgeon tomorrow -

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

Since my biopsy - my breast is getting incredibly sore and hard - hurts most of the time - even when I am sleeping it is waking me up - is this normal? It's all black and blue from the bleeding when they did the biopsy.

still waiting for my results which I get back tomorrow - but my other doctor says she got back some comments from doctor that did biopsy saying extemely suspicious - so I have gone from suspicious to extremely suspicious - still praying its just an infection or cyst. Has anyone had an infection or cyst like this?

I am supposed to be flying to Florida for 10 days in a few days time with my girlfriends - I am thinking positive - but if it isn't how long does it take before they schedule you for a lumpectomy or similar surgery? hate to bail on my girlfriends as it was my idea to go on vacation - this was all well before this.

thanks for all your support!!

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

I had a breast infection and my surgeon prescribed antibiotics, which did clear it up. You have to be very careful with infections, so, make sure your doctor helps you.

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Lola, are you any better yet? Please seek another opinion if you aren't getting a lot better.

Worrying about you,

Noel

VickiSam's picture
VickiSam
Posts: 8220
Joined: Aug 2009

I horrified by your medical ordeal!! You are taking charge and control of your health issues, no DOUBT.

Please update us when possible. We are praying and sending out positive thoughts
for you.

Strength, Courage and HOPE for a Cure.

Vicki Sam

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Horrific is the right word! Hugs!

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

I feel my world is crumbling around me - went this morning to hear the pathology report had the surgery Nov 12 - had to wait till Dec 5th for the pathology report - news was not good - even though the mri did not show signs of cancer in my lymph nodes - the surgeon took 3 and found cancer in all of them - he now wants to do surgery next week to remove 10 to 20 more lymph nodes on my left side - he now realizes the cancer is more aggressive than he thought - the tumor was actually 7 cm - he said we will just have to take it a day at a time and after my next surgery he will have me meet with an oncologist to discuss the next steps - chemo. I had prayed it was not in my lymph nodes and had kept positive - I am so scared - we are about to decorate for xmas and all I keep thinking is this is my last xmas with my kids. I always have such bad luck - and since hearing that I had cancer I found out why I was in so much pain - that the doctors said I was imagining - I have kidney stones - which are quite painful - only took 10 visits to the hospital and doctors to figure that out. While I was at the Emergency of course I pick up a bad cold - and now have bronchitis - which I have to get rid of before surgery next week or they won't do the surgery - can anything ever go right? I asked the surgeon what my odds are and he said no one knows - it all depends on how I do in chemo.

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I am so sorry Lola. I will be praying for you.

Hugs, Angie

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Hoping and praying that the chemo will work.

Lots of big hugs,

Megan

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

Lobular invasive - 3 lymph nodes positive - they are going to take 10 to 20 more on Monday - still haven't met with an oncologist in Canada yet - big mystery why no referral yet - just stuck with a heartless surgeon - who downplays everything and wouldn't even tell me what stage the cancer is at - my husband had to argue with hospital yesterday and demand a copy of the pathology report - he paid $30. to get the copy of 8 pages - ridiculous why they wouldn't give it to us - I faxed a copy to the oncologist in Florida but he wouldn't provide too much advice - just told me I need to see him once my lymph nodes are removed - not that easy when you have to keep jumping planes to get there - spent the last 2 days screaming for a better cancer hospital to be referred to - my GP is away so I begged her secretary and she did the referral for me -hopefully next week I will see an oncologist - I want to get on temoxafin asap!! I think I shud have been on this for the last month - my pain in my back is so bad now - I know its not just kidney stones as it burns all the time and has spread all the way down - I feel like my body is one fire all the time. The Florida oncologist said looking at my pathology report I have about a 50/50 chance of surviving a year but that depends on the spread of cancer to my organs - could be less - but at least someone is finally being truthful. I just cry all the time I look at my kids - I cried this evening putting up the xmas tree - looking at the ornaments my kids made when they were little - just think its my last xmas. My husband has been so great - I am so sad - I can't imagine leaving them all - I'm just not ready to go - I was really looking forward to retiring in Florida with my hubbie and finally enjoying ourselves - I have worked full time since I was 16 - I am 56 and thought I could slow down and enjoy the kids, see them get married and have their own children and this all seems to be slipping away. My youngest just turned 17 yesterday - she is developmentally delayed - and I worry about her having no mother - she doesn't understand the depth of the illness - she thinks its something like the flu. I am angry at myself for not going to the doctor sooner to be checked - I felt the lump in August but as I swam 50 laps every day I just thought it was a muscle - how stupid is that! - then my sister in Australia who I rarely see wanted to go to England to meet in early September for a 10 day vacation - I didn't want to go cause I was too busy with work - but I did as I didn't want to dissapoint her - I wish I hadn't gone as I am sure I would have gone earlier to the doctor. When I got back from England I was so far behind with my work that I just had to catch up with it as I was putting on a huge seminar and I was the organizer (I didn't want to do the seminar - but others kept bugging me to do it and I again didn't want to dissapoint them so I did it - again it was a very stressful job and I wish I hadn't done it and concentrated on myself for a change - I kept thinking I better go get that mammogram - but cancer doesn't run in my family - so just didn't worry - as soon as the seminar was over I shot over to the Doctor Oct 3rd - too late - wasted a month - that could have been vital - as apparently this cancer is so aggressive - one month makes a huge difference. I know since the biopsy I have gone downhill quickly - just pain every day - pls God - let me get help from an Oncologist ASAP - GIVE ME A FIGHTING CHANCE - I JUST DON'T WANT TO LET THIS HORRIBLE DISEASE TAKE ME FROM MY FAMILY - Please anyone out there that had Lobular Stage III/III with lymph nodes infected and pain throughout their body - Pls tell me I can survive this ???????????? I need to hear success stories to keep me strong THANK YOU SO MUCH LADIES FOR ALL YOUR SUPPORT SO FAR - EVERY TIME I FEEL LIKE I AM DROWNING I GO ON THE SITE TO GET SUPPORT - IT REALLY HELPS LOVE LOLA

dianehelen's picture
dianehelen
Posts: 131
Joined: Nov 2012

Oh MY Lola, I am just reading your story now, and am just horrified. I dont even know what to say other than my heart is aching for you and your family. I read your story and feel really embarrassed for complaining so much about my situation.

I also felt my lump and just put it off, because I also had vacation plans etc. Now I look back on how stupid I feel.

I am also just horrified at your medical care. The health care system world wide seems to be a mess, with no easy answers. Here in the US we yearn for single payer systems, but when I read stories like yours I wonder if we would handle that any better. Our system, to have insurnace is insanely expensive, even if you CAN get it. That is about to change, hopefully for the better but who knows. My husband, who should be about retired, has to work a crappy job, after 30 years of being in management, now drives a bus for Disney, crazy night hours, JUST so we can have good health insurance. That said even with that, my 8 hours in the hospital for my surgery, was billed at $10,029, and my deductable for that is over $2000. Just insane, I dont know what the answer is. But at least I have great care and great doctors, and specialists and dont have to wait crazy time frames just to get answers and help. My surgery was Monday, the surgeons nurse called me Thursday with the pathology report, and the surgeon himself called to check on me and confirm yesterday.

I dont know what your future holds, but I just wanted to add to the love and support others have shared here. I am relatively new to all this, and still living in my own terror, but your story just touched and shocked and hurts me to the core.

I hope you get some answers and some good care, and maybe pull a miracle out of a hat and come thru this.

survivorbc09
Posts: 4378
Joined: Jun 2009

All I know Lola is that none of us have an expiration date on us, no one! Some on this site were given only months, some a couple of years and they are still alive and living life yearssssssssss past what any doctor said they would. Never give up, keep fighting and try to stay positive.

Thanks for the updates and keep them coming as we all care for you.

Hugs, Jan

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

I cannot believe that I was diagnosed Oct 18th/12 with lobular breast cancer and now on Dec 31st/12 - new years' eve the oncologist tells me that chemo put on hold as they finally did a ct scan on my organs and my liver is showing spots - too many to operate - very small spots less than a 1 cm ea - but there are about 7 scattered around the liver.  Even though the liver can grow back after operations - they on;y operate on large tumors as a last resort - and the mortality rate is high.  Although my prognosis has changed from a 50/50 survival of Stage III/III breast cancer to now being told I have 6 months to live if the chemo works possibly 9 months - but the doctor said she will only say 6 months for now and see how I repond to chemo --  I started this morning on Taxol for about and hour and a half - will do 3 weeks on and one week off for 6 months.  they will send me for another ct scan in 3 months to see if chemo is working.  Doctor told me to get my affairs in order and enjoy every minute I have with my family and do everything I enjoy doing now.

I am so depressed I just cry all the time - my husband and kids are devastated - we are building our retirement homein florida and I will never get to enjoy it.  I have to keep positive but every day is just more bad news - I was so looking forward to starting chemo to get better - but there is not much to look forward to as there is no light at the end of the tunnel.  Today I sat with the social worker, my husband and doctor during my first  chemo session - everyone is so supportive but they all say they feel so helpless as they want to do more - and no one can - only god may bless me with more time with my wonderful family.   trying to keep postive  - I'm going to see and psychologist soon for some help to keep positive and try meditating.  No effects from chemo which worries me - I am not tired or feeling ill - but I just had it this today - so maybe things will change - I am worried chemo is having no effect on my cancer.

I can't stop blaming myself for letting this get out of hand - and insisting to the surgeon (who was a complete idiot) that I wanted to see and oncologist in Canada before surgery - as I had heard lobular cancer can be very aggressive and spread quickly - I feel that if I had had the chemo first to shrink the tumor  in late October - I may have had a chance at it not spreading to my liver.  Any ladies out there that have liver spots and living for longer than 6 months?? - pls give me some hope - anyone use taxol for this cancer that have been successful in delaying this horrible disease?  Pls let me know and give me hope.  At 56 I'm just not accepting this very well

love you strong ladies

 

 

Josie21
Posts: 337
Joined: Nov 2012

I am so sorry you are facing this challenge. I wish I could be more helpful to you, but maybe one of the other ladies can be. Since that idiot spammer was on the site this weekend I just wanted to make sure everyone saw your post. You are in my prayers!!! And please stop blaming yourself. You did nothing wrong. 

delayne_11
Posts: 5
Joined: Feb 2012

Dear Lola,

i do not post often on the board, but I feel overwhelmed to reassure you that NO ONE knows how long we have to live! The numbers given to you are worst case scenario statistics. As you may know, I am my sister's caregiver. She is 40 and was diagnosed with Stage 4 breast cancer with metastasis to the brain on February 1, 2012. She was given 6 months to live. She is alive and well today and has responded very well to her treatments. (Arimidex and Xeloda, total brain radiation, craniotomy) The Oncologist says she has many good years ahead of her. So yes, the statistics with her type of cancer do not look good, but NO ONE knows!! She and many more here are living proof of that. Attitude is key to your health. Please just love your family, love yourself, and enjoy you life. I will never understand why things happen. I work and have for 10 years as an EMT for our Fire/EMS Department. I have seen just about everything and believe me, life and the outcome of life is not for us to question or wonder about. God has that covered for us. Be happy sweet lady and never give up. We will never understand everything and that's ok....sometimes that is just the way it is meant to be. Please keep us informed as I follow your story closely and pray for you daily. 

With love,

Traci

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

I am just overwhelmed these days with sadness - and I know I have to stop feeling this way but it is so hard - I am trying to keep hopeful that I will be the lucky girl who gets to live another 2 years - even if it is in pain - I spent hours and hours scouring the internet for clinical trials on liver mets - but I see why my doctors keep telling me to just enjoy the time I have - its is so difficult to find a trial that will even take you and then there is no way of knowing if it will even make any difference in extending your outcome at all.  I have gone over all the stats and liver seems to be one of the worse scenarios - haven't found anyone yet living beyond the 2 year mark - and they are the lucky ones.  I just had a friend pass away from brain cancer doctors gave him a few years - but he fought the battle and lived 11 years - he was fortunate to be able to see his children grow.  I just wish liver cancer had more good news - but there doesn't seem to be a ton of research on liver - breast cancer is getting the research but if you have breast cancer and it mets to the liver - you are in the liver category and suddenly I find the doctors change their tune and youre done.   I sat last friday on chemo watching the other women complain about how they will lose their hair during chemo in their fight against breast cancer - and I thought how lucky are they to be fighting breast cancer and that it has not metastisized elsewhere - I am so sorry to think this way - but its so hard when you are given no hope of beating a cancer.I could not believe I was thinking that way - that they are lucky to be fighting a cancer they may be beat.    the nurse told me they rarely get someone coming in on their first chemo treatment that is terminal - and she was so sorry for me - everyone kept telling me you don't look sick are you sure the doctors are right?  well on your first chemo treatment you don't usually look too sick - makeup and hair always helps you look good .  For xmas I asked my kids for a family portrait photo - which we did - it came out great - haven't had one done since they were little - the photo was taken before I knew the cancer had spread to my liver -  I could see in the photo I had hope - my daughter expressed how good I looked in the photo - mentally I was still fighting this disease as there was a chance of beating it - but now its come down to how long and how well I can manage the chemo to keep the fight going.  chemo is great if you have hope but when there is little hope - you really wonder why bother doing the chemo to make you even sicker and they tell you the same thing - 6 months.   I'm sorry to go on - and I know I am feeling sorry for myself - I just wished I lived in the U.S. where mammograms are done every year - this may have been caught - not like in Canada where they are only required every 2 years - I had to insist on one after a year and a half because I felt the lump.

My husband is actually a firefighter for 25 years and even though  it is always hard to watch someone you love go through this - he is amazing - but it is taking its toll on him.

Thank you for the website - I will check it out - I have to get my head around this - and keep on -  my husband is going on a trip to Florida Jan 28th - I may just hop on the plane too -  what do I hve to lose???  - I can always pay for a chemo treatment in the U.S. while I'm there so I don't fall behind - although at this point I wonder if it would even matter if I missed a treatment.    Pls any Stage IV ladies chat to me and need your help and support - I will be there for you once I get over the shock of this.   Love you ladies  - Lola  (ps that's my puppies name - I am Phyllis -  I may as well come out of the closet - lol)  I was protecting my privacy but cancer is not a private disease as we all know. 

DebbyM's picture
DebbyM
Posts: 3295
Joined: Oct 2009

Sending you a big hug!

camul's picture
camul
Posts: 2004
Joined: Dec 2010

either way, I just read this thread for the first time.  Do not panic because it is in your liver.  Chemo does work systemically so it should slow the growth in the liver also.  I am stage iv and was initally told probably 3 -6 months, maybe a little longer if the chemo slows the progression.  It did on the initial chemos.  I am still her 2 1/2 years later.  The cancer never stopped growing but it did slow significantly at first.  I was stage 1 with IDC in 2002, and diagnosed with mets to the bones and skin in 9/2010.  While on chemo, it spread to the connective tissues and liver.  First spot to the liver was about 18 months ago , 3 months later, the spot was a tumor with an additional one, so now 2 tumors in the liver. 

My initial mets diagnosis was to the bones and skin, with tumors "too numorous to count". I have never given up hope.  I was on chemo for almost 2 years on weekly regimins, then daily.  It got to the point where my body will no longer tolerate chemo so I am only on Herceptin, Evista (a hormone blocker) and a bone shot every 4 weeks.  My mobility had decreased, and the pain increased, but I have been so blessed for these last 2 1/2 years!  There is a good chance that you may respond very well to the chemo and be around for many years, the doctors go by statistics, and we are not statistics!  Look at Doris (Sirod), and Cypress Cynthia, they have been around for many years with mets. 

My oncologist has said since day one of the tumors in the liver, as long as the bloodwork is showing that my liver function is good, we wont worry about the tumors.  My function changed about 5 months ago.  He repeated the tests 3 months later and it is still functioning.  Unfortunately, my cancer has never stablized or gone into remission, but I am still here and living, so the chemo slowing the cancer has been enough to give me more time.  Never give up.  You can live with tumors in your liver.  Initially I pressed my onco for a timeframe, but even when he gave me 3-6 months, he said that was only his opinion based on how widespread and aggressive my cancer is.  He also said that didn't mean anything, it all depends on how my body responds, and mostly my attitude. 

Phyllis, as hard as it is, please do not knock yourself down about what you should have done.  With Lobular, it usually doesn't even show up until it is fully formed. 6 months prior to my mets diagnosis, I went to the dr for neck/spine pain and was told it was a herniated disk and referred to physical therapy.  In the month before I was diagnosed stage iv, I went to a clinic for pain in my chect/ribs.  The Dr took a lung xray, didn't like what she saw, sent me to the er for a ct.  The er dr told me it was nothing, and gave me loritab for the pain.  Told him I wouldn't take it as pain meds make me too sick.  He said take tylenal.  3 weeks later, went to Washington, 12 hour car trip.  By the time I got there, my back hurt so bad as well as my chest.  Came home 5 days later, called onco and he saw me the next morning.  Looked at the CT from a month earlier and said it looked like my bc had metastisized to my bones.  PET confirmed this. 

This was all at a US hospital.  I think sometimes there are just doctors who are ignorant and too full of themselves to do the research so they can give a proper diagnosis.  I do not believe it is just the Canadian medical system.  There are bad doctors everywhere, as well as excellent ones. 

I hope you are able to spend this time with your family doing all the things that make you happy and will give your family happy memories.  My blessing in this disease was learning how to say no, and being given the opportunity to spend time with those I love and cherish. 

 

Never give up hope.  My prayers are with you,

Carol

 

 

 

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