Ok. This is probably a really stupid question - so glad this board is anonymous - but what happens if you are in a trial that is working for you and it ends? Are you just out of luck? I'm in a trial with two already FDA-approved drugs. But I guess the way this works is that their combination as a viable treatment has not been approved, and so therefore insurance would not cover use of the two drugs together until official approval? Is that right?
And what about other trials? What happens if you enjoy tremendous success with a drug that is being tested and the trial ends? Must you then give up on that drug and find another, and hope you live long enough to see the drug you really want wind it's way to FDA approval? Yikes.
Now some old hands at this might smile at my naïveté, knowing that all drugs have limited effectiveness. But, wading into the waters here, us newbies cling to the gold standard, those wonderful success stories of folks benefitting from the same drug for years and years.
(sigh) This is such a chess game, isn't it?