Oct 15, 2012 - 10:37 am
Hi my name is Patricia i was diagnosed in April of this year with Follicular b cell lymphoma and when i saw my doctor he thought i was just in stage one or two i had to push to get him to do a bone marrow test which proved to be stage 4 to his dismay. He was shocked to say the least i have been taking Rituxan since and now i take it every 8 weeks i will always be in stage 4 he told me but it has scaled back some. They call it remission he said but it is only scaled back but it can be yrs before it comes back to where it was. I am happy. I am still tired and i catch everything under the sun virus's etc. lol After treatment is when i can really catch anything and i have the last two treatments virus's. I am told someone with 4 stage has about 8-10 yrs. So amost a year in April i am not counting the time but i am aware. I live a happy life. And also i am told that I have a 50 percent chance of developing the aggressive b lymphoma which i know in my heart i won't just mind over matter. I was just wondering if i could connect with anyone else that has follicular lymphoma. So we can talk about treatments and new clinical trials that is happening i been abreast on conferences and new research on this. Well thank you for allowing me to post I am a 51 yr old grandmother and would love to meet others with the same/ I started juicing and not eating meat and milk i make soy shakes and use kale and other veggies to juice and drink. I changed my whole way of thinking and eating .