Oct 14, 2012 - 10:58 am
I am a 41 year old survivor of ALL. Was diagnosed at 15. I had agressive chemo for 2 years and also cranial radiation. For a while now I have noticed my memory slipping as well as being tired all the time, achy bones, congnitive impairment, and other things. I also have felt for a long time that I think in a different way somehow than most people, I really cant explain except that I feel like I am different and dont fit. I feel like people think I am faking all these symptoms. I have done some research on The Long Term Effects of Cranial Radiation as a teenager, what little there is out there confirms my ideas that while I am a survivor the effects of these treatments I had steal my life in other ways. I also had growth problems. I am desperately looking for other survivors who share these or similar effects. I feel alone with no support. Is there anyone?