Oct 10, 2012 - 7:20 pm
I am new to the site and have read through many posts in this thread. Everyone here is so supportive and nice, it seems like a nice place to be.
My father was diagnosed in January 2012 with Non-Hodgkins diffuse large B cell lymphoma. Upon diagnosis, it was pretty severe. Stage IV, but negative in bone marrow. Mostly in liver and spleen. He started R-CHOP and after 3 of 6 treatments had a PET scan. Doctors said he was in remission, although his thyroid was "lighting up", but all signs (apparently) pointed to thyroiditis. He had it biopsied and it came back benign. He continued his 3 other treatments. In July he had a routine PET scan that showed more activity in the thyroid. It was surgically biopsied and came back as the same lymphoma. So was he really in remission? Doctors say yes and that it reoccured, I say no that it never went away. Fine needle biopsies are known to produce false negatives. Anyway, not the issue anymore. So the next step is the stem cell transplant.
With all that being said, I have 2 major questions:
1) Any advice on how handle the transplant and what to expect that maybe doctors don't think to mention? (from a patient's perspective and from family perspective)
2) His oncologist said that there is not a "maintenance" treatment, yet we know a woman that had one years ago and I see you guys speaking about it (Rituxin). So anyone out there that had duffuse large B cell and used Rituxin as a maintenance?
Oh man, I am long winded. I hope everyone read though this to help me out. :)