Oct 09, 2012 - 10:57 am
Haven't posted much lately, but pop in to keep up with everyone when I can. Wanted to share some good news -- I've had 4 scans since dx in February, and all have shown improvement, and CEA has dropped from 44 to 1, and stayed in that range for months. Which is nice for a stage IV, terminal dx. Scan results last week showed the liver mets to only show remnants of the lesions, and my local oncologist described them as "burnt out." He seemed very pleased and somewhat flabbergasted. I also see an oncologist an hour away at an NCI facility and I saw her the same day. She was equally pleased and surprised. I'm on folfiri, irinotecan and vectibix. This is where it diverges -- he (the local guy) suggested putting me on the pump for 5 straight weeks and doing radiation. The NCI onc. disagreed thinking that going oral with xeloda could be the way to go. She's presenting my case to a board next week and I'll see her again with a final recommendation a week after that, so for the time being I'm on the same stuff. At each turn I've sided with the NCI recommendation, but I receive treatment locally, and I'm wondering when the local onc. will tire of me never going with his recommendation. Doesn't seem to be a problem, but human nature is what it is. The NCI joint isn't too bad of a drive, but it's nice to stay in town for treatment. They also want to take me off vectibix, at least for awhile, because my fingers are a cracked up mess and hurt like hell. Any thoughts on these differing treatment ideas, and/or information on xeloda -- good, bad, or otherwise -- is appreciated.