Oct 07, 2012 - 10:08 pm
With so much discussion about treatment options going on, I want to tell you about my Thursday. I've stated more than a few times that I wonder just how "rare" UPSC is, since in my little world, in the past 2 1/2 years, I have personally known 3 women with it. My cancer was the garden variety, endometrial adenocarcinoma. I don't personally know anyone else with this type that's supposed to be so common, only UPSC women (and of course, many many breast cancer survivors). Go figure.
2 years ago, when I was going through chemotherapy and radiation for my breast cancer, a high school friend who had UPSC and I supported each other as she was going through her treatments at the same time. She was Stage 1B UPSC. She had 4 rounds of carboplatin and taxol and internal radiation. We hadn't talked in about a year and that's just not right, and she's really been on my mind, so Thursday I called her. Her cancer is back and she's back on chemo - again carboplatin and taxol since it was initially successful (really?). Her recurrence is throughout her pelvis, but organs all look ok. It's not at the top of her vaginal cuff that we all have so carefully checked. I guess the internal radiation worked. She did not have external pelvic radiation. Would it have made a difference? I don't know. As Maggie used to say - "it's a crap shoot".
I post this just to add to our "database". It just plain sucks.