Oct 02, 2012 - 12:02 pm
I thought my signature with hubby's stats would show, but it doesn't. Here's his stats so far
PCP repeated PSA and did DRE on Aug. 20- PSA 81, DRE- 'firm'
Uro- did DRE (firm) Aug. 28- scheduled biopsy
Biopsy- Aug. 30 8 out of 8 cores positive Gleason 5+4=9 cores range from 50% to 90% involved (lowest gleason core was 4+3=7)
CT and bone scan on Sept. 5- no sign of spread
Hubby chose surgery because URO told him he couldn't have surgery after radiation, but could have radiation/ HT after surgery if needed. Fully prepared for ED, incontinence, etc. Knows uro can't use nerve sparing techniques. Wants it out! Also want to 'really know' if it's contained, 'real' Gleason, etc.
Hubby truly believes scans are 'right'- I tried to explain that they won't 'show' any spread until it's significant- esp. the CT.
There will be no more tests prior to surgery and no second opinion at this time- I've accepted that. Putting things out for him to read, more discussions, etc. would only anger him. NOT going to do that.
My biggest concers are
My questions now are-
Can they do Free vs attached PSA, PAP, PCA3 tests sometime post surgery? I know they will do a regular PSA about 3 months after surgery.
Would an MRI be more likely to show mets than a CT and/or Bone scan? Why / how? This won't happen prior to surgery- but I may push for one sometime post surgery.
What pain (and other symptoms) should I watch for - especially for bone (and other) mets? He doesn't handle pain well in the first place. What I've read so far indicates bone mets are extrememly painful.
Not to brag, but I know a good bit of anatomy - even have a very basic medical understanding, and have taken some biology and pre-EMT/first responder classes in the past- so know advanced first aid and can 'speak' /understand 'doctor' rather well. I know where his lymph glands are - they do swell regularly since his bout with rock mt. spotted fever 8 years ago. I recognize nerve bundles when I massage his feet/legs/back/neck, etc. and can 'follow' his pain. It may sound weird- but I am somthing of an empath.
I just want to be ready and able to help him. Knowledge is power to me. Another 'weird' thing about me (at least in my family)- I'd rather prepare for and expect the worst- then if things turn out better I'm ok. I HATE to be 'blindsided' by 'worse' news.
THANKS SO MUCH FOR LISTENING and for all the advice. I know I sometimes over react to criticism of how 'he' is proceeding. But that is just frustration on my part.