Oct 01, 2012 - 11:47 pm
I was diagnosed with FAP two years ago. I am not cancerous as of yet, but am wondering if there is anyone else out there who has FAP? My FAP is a genetic mutation of the APC gene, no other family history of FAP. I will soon see a colorectal surgeon in regards to getting a total colectomy. I have been researching the goodness out of all the options with FAP and what treatment options are available for two years. Not until my most recent colonoscopy did the doctor ask that I see a colorectal surgeon within two weeks.
My doctor found atleast 4 carpet leasion. All were biopsied with no cancer findings. My doctor explained that carpet leasions are something that he would normally see before cancer forms. This is the second doctor that I have seen in regards to my FAP diagnosis, I am not afraid or concerned about his findings. I just wonder (making me a little uncomfortable) how long until the results do not come back negative.
I would assume that if cancer is found before, during, or after the colectomy that chemo would become involved.
I know that these types of things are a very private matter, but to have another individual to discuss this with that would not fear for my life (most of my family and friends) to talk to would make this easier (I think). So basically I am looking for a few FAP battle budies :-)