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long term survivors out there

gtp1164
Posts: 10
Joined: Sep 2012

long term survivors out there with stage 4 lung cancer.. so far snice i found out july 18 2012 i have been very good.. i have all the hope in the world. but to hear some stories will be even better.. thanks Gina

dennycee
Posts: 644
Joined: Mar 2011

Hi Gina!
In two weeks I will celebrate 2 years survival. I was given ten months to live then. If we met today you would not know I have cancer. There is a man at inspire.com who has survived 13 years. That site and this one have members who have survived longer but they rarely post anymore. This site is a quieter and laid back than that but I like both.

Anyhow, I really can't explain why I have survived. I eat sugar, don't juice, or follow special diets. I do exercise and eat well. I like my ribs and beer, ice cream and fried foods too though. Can't work but can and do volunteer here and there an hour or so at a time. I have travelled as far south and east as Naples Fl an as far NW as Seattle. I never had the time to do this before. I have taken classes in making pots and jewelry making. Over all I would say I am enjoying a good quality of life.

gtp1164
Posts: 10
Joined: Sep 2012

good 2 years and still going strong thats awesome .. my doc wouldnt say, and frankly i dont want to know. but i am happy when i hear all the good stories like yours. I have stage 4 mets to bones. i had my catscan last week with only 2 full rounds of chemo and they couldnt see the tumor that was 5 to 6cm.. one noed the was 3.4cm now 1.6 and the others that we there are not.. so i feel so lucky.. waiting for petscan in 3 weeks.. i know that well be good.

dennycee
Posts: 644
Joined: Mar 2011

Excellent news. Was the bone mets one that disappeared? It's terrific that you feel good and are going into the PET that way. I have not had scanxiety since my first one because I trust my body when it signals that it is doing better. My mets was to right lung, liver and lymph nodes each of them is scar tissue now. Yeah.

gtp1164
Posts: 10
Joined: Sep 2012

they see boney lesions on my right rib cage.. the pet scan will show more. when is your next scan?

dennycee
Posts: 644
Joined: Mar 2011

Next scan is in five months. I had one about a month ago with great results. It is almost two years since diagnosis and every 3 month ct has shown shrinking or stability. So this will mark my first six month scan. I read your CT report on the other thread!! Excellent report except for the bony lesion thing (i know nothing about).

When is PET scan?

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