Oct 01, 2012 - 12:10 am
I am very interested in talking to someone who has Rituxan monotherapy as their initial treatment for Non Hodgkins Follicular Lymphoma. Seems to be working for me. However my therapy for Stage 4 NHFL has been very intense. I had 8 weekly infusions to start vs the more talked about 4. My maintenance is one infusion every 8 weeks vs the more common every six month cycle. My dose is 800mg per visit. This is supposedly the European treatment model. I am wondering if anyone else on this board has had that much Rituxan over such a short time? It seems to be working fine as I had a "total response". Total Response does not mean cured or even symptom free. I recommend it for those who are candidates (low tumor burden, treatment naive) because its not nearly as traumatic as the more aggressive therapies. However I think there are several side-effects that are unpleasant. For me its muscle and joint pain. Doc says it may or may not be the Rituxan. Since my lab work says my B-cells in the bone marrow are "virtually undetectable", I am trying to be careful about infections. To date everything has gone well. Sharing your knowledge and/or experiences would be appreciated.