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Tumor in the Brain - Meningeal Sarcoma

rcook
Posts: 2
Joined: Sep 2012

I'm looking for someone that has been diagnosed with Meningeal sarcome or someone that has experience with it. My son was diagnosed 10/2011. He had tumor removed then; two short months later it came back; another surgery (left frontal lobe) reoccurred in the exact same place, started proton beam radiation in Jan 2012, three weeks into treatment it came back, did not remove that time just kept going with treatment, end of radiation it was gone that was March 2012. June had MRI was told it was clear but it had a small spot and two weeks ago, back in ER with another tumor the largest of all, in same place. He had his 3 brain surgery to remove and has now started chemo this past Friday. He has had a number of MRI's, Pet scan, and CT scan with no other cancer. Doctor say this is very rare adn even more aggressive. Please let me know if you have any information that could help my son!

jenstuart
Posts: 4
Joined: Feb 2014

i so pray that this message isn't too late, i just joined and saw this post. My son Levi was diagnosed with meningeal sarcoma, when he was 10 months old. at that time the tumor was in the right frontal lobe and was the size of a large grapefruit. HE had the tumor resected. we did a strict herbal diet for him, lots of carrot juice, and sweat potatoe juice and different tinctures from dr. schultz. When he was 4 it had metastized to 5 different locations of the brain, including the brain stem. At this time we decided to do gamma knife as surgery was out of the quesetion. We however still refused chemo and stuck with our diet and tinctures. Levi is now 10 and is still cancer free. Please let me know if this was helpful

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