Sep 29, 2012 - 8:37 pm
Hello all my brave warriors!
As you all, most know...my cancer has spread and Metastasized all over my body. After getting a few other opinions I will be doing what intimately was suggested by my new doctors at University of Chicago Medicive. I will be doing four rounds of this chemo cocktail that's a bit different than most. This cocktail has no ribotuxin (sp) for they are saving that for after chemo. They believe it will attack the tumors better w/out being brought into the chemo mix.
It will be one week on and two weeks off. I can do all that down here in peoria. When UofC starts to administer the ribotuxin ( round two) I will be going up there once a week for a month and then onces every two weeks. The third phase will be some new trial drug I will be using thru them and has shown tremendous improvements in SCC patients.
Plus they are getting my original tumor removed from my tounege to do some studies on it to see if they can locate exactly what they are dealing with.
I have been in bad shape lately. I am very sore and these lumps are not getting any better. Plus they chose the worst parts of my body to pop up on to make it just that more uncomfortable to sit, lie down, recline, cross legs, kneel....you get the picture.
Anyway, I am starting to look at other more "natural" and non toxic ways to help... The pain meds just are not working.
The only question I have is this: the four day chemo I am doing from what I understand is, I go in on Monday's where I will get pumped full of this cocktail for about 4-5 hrs, I think? Then the send me home with a fanny pack four days until Thursday. They than remove the pack that will be administered thru my mediport I had installed about two weeks ago. Anyway, what am I to expect? Am I gonna get sick as hell, feel like crap for these next five days or what? Is there anything I can do to prevent some nausea, keep strength etc?
Thank you, and sorry I've been away for awhile... Took some family time to do some things and was pretty depressed to hear I have 8-10 months to live. Just not fair to my wife and kids. They are all to young, way to young to deserve any of this.