Sep 28, 2012 - 1:41 am
First the facts as I understand them from the research papers I have read.
- one of the sine non qua of follicular Thyca is capsular/vascular invasion.
- follicular cancer tends to met to the lungs and bones; and if it is going to met, it does so in the first 12 years.
- fully encapsulated FVPTC with capsular/vascular invasion tends to follow the path of follicular Thyca, although currently classified as a papillary cancer
- I have E-FVPTC with capsular/vascular invasion; no thyroid capsule penetration; clean lymph nodes.
- It is rare for E-FVPTC to be found in the lymph nodes of the neck if the tumor has not penetrated the thyroid capsule. Usually at presentation all lymph nodes are found to be benign.
-Hashimoto's and people with many autoimmune disorders are more likely to have thyroglobulin antibodies (I had Hashimoto's thyroiditis and am being tested for SLE due to abundant AI issues.)
-I am not certain of this. I found it in at least one source, but I was looking for other info. It is logical. Follicular cancer, if it has metastasized and survived the original RAI, then it is likely not Iodine avid.
So I feel I may have only one shot at the RAI.
Tonight's primary concern is that my house is full of betadine dust, particles and dander. Up until yesterday I used it to treat skin issues on my dogs with betadine. It can enter the body if it is moist; so via clothes (fabric) when we sweat or touch something with wet hands or use a contaminated towel to dry off. Or it can enter via the lungs on particulate matter like dust and dander. I can't clean this house appropriately before the RAI, and in fact if I started now, short of clearing my house of all objects and bringing a hose and wet vac in, I couldn't clean it in a normal lifetime. Every article in the house, all furniture, rugs, carpet etc would have to be decontaminated. I have no one I could impose on for 2+ weeks, I can't imagine isolating myself to one room, and short of cleaning the furnace and heating ducts it would do no good. I want to be told I am making a big deal out of nothing, but I don't know how much iodine it takes to block RAI. The menu I was given is very lenient and I certainly am going to follow a far more strict diet. I am worried that I will not achieve the low iodine levels I need in order to adequately absorb the RAI when they give it to me on the 26th. I am washing all clothes and things I use personally very well and setting them aside in a separate bedroom. The dogs will be washed tomorrow or Saturday whenever we can manage it. The house will be vacuumed several times. It is a large house, and short of a professional decontamination job, it can't be done. Who would think an otherwise safe antiseptic could present a problem like this?
Has anyone been told that they didn't absorb the RAI because they had too much regular iodine in their system? For example they screwed up the diet? I suspect they can tell by looking at the scan because the thyroid bed and the intestines wouldn't show much RAI as it was blocked by non-RAI.