Sep 27, 2012 - 4:45 pm
This has been a long month since stopping chemo. Yellowstone was wonderful, the fires started the day we were there and it was so clear. 2 days later we drove over the back side of the Tetons to a wall of smoke in Jackson Hole. The wind shifted and by noon it was clear. There was a lake about 8 miles from the cabin and we caught fish everyday. No internet or tv, just great relaxing time with my family.
I have changed my diet to try and naturally strengthen my immune system. I have lost 5lbs, and my numbers have come up some. Cut out dairy except for nonfat on cereal, most sugar, wheat, and low meat. Mostly veges and fresh fruit. Still working on the Diet Pepsi, this is a hard one, I cut back. At this point it is too feel better so I don't say I will never eat something again!
I have also joined a support group and there are all kinds of cancer survivors, those of us who are active, other stage iv's, one stage iv bc who refused chemo from the get go and is still doing well. A really supportive group. I fought going, but am so glad that I joined. It really is great being with others who are in the same boat and are staying upbeat!
Saw MO today. and got the comparison results, considerable growth in the tumors in my hips, spine and tailbone. I expected it although I was still hoping that the tumors were stable. Also tumor activity in the ribs/connective tissue. I was not devastated by the news as I saw the pain dr on Monday and he said there was growth. I went with no expectations today.
Good news is my numbers are back up and he is giving me the option of either doing another round of an oral chemo combo Afinitor and Exemestane, or Lapatinih which is also oral but is a stronger Herceptin. It will be one or the other. I will let him know what I decide. He is hoping it will slow down the growth. Has anyone heard of it?
I was surprised after being told when he stopped the Navelbine that my immune system was so compramised, to go home and nest! My Neu has come up in the last 6 weeks and no infections, he believes this chemo combo may be tolerable to my system with less side effects. I should still have quality of life while on it.
I have been on so much chemo and this bi**h of a beast has just not given me a break. It is a roller coaster ride, but I am so thankful that I am still here and living, but it sure has not been an easy ride.
Sorry it is long,