Sep 26, 2012 - 10:06 pm
I know only enough about this mutation do know that it is something to be concerned about having. I have read a few research papers, but have not started obsessing about it. Is it something that is done without requesting it, or must you demand it, or must you already be diagnosed with metastisis? I think I read that it must be done from tissue, as it was mentioned in the context of "the next time you have surgery..". Is that true or can it be done from blood?
Obviously it can be argued that knowing you have the mutation is just going to worry you, on the other hand, it suggests that you should be followed as closely as is possible.
I would like to hear what the specifics are about getting it done, and what people think about whether or not it is advisable to request it.