Sep 23, 2012 - 7:55 pm
My mom was diagnosed with stage IV glioblastoma multiforme in May, has now had two surgeries, radiation and chemo.She is only 56 and was very healthy before all this happened. She had a moderate stroke during the second surgery so now has a very difficult time communicating....along with vision loss and other changes in her personality. She is no longer receiving chemo or radiation due to the aggresiveness of the tumor and terrible prognosis that the doctor gave us about 3 weeks ago, but was put on Dexamethasone, kepra, aspirin, and a couple other meds for cholesterol, etc. The doctor told us to wean her down slowly off the dex, and she stopped taking it about 2 days ago. She now has basically no energy, has been spending most of the day in bed and sleeping through the night. She is too tired to do much, and has mood swings. She has basically lost her appetite which was great when she was on the dex.... I wanted to see if anyone else has experienced extreme tiredness and fatigue after tapering off dex, or appetite problems? I am worried because I can't tell if it's the cancer that's making her so tired because it's getting worse or if it's just dex withdrawl....if anybody has any advice or is/has been through a similar situation, any advice would be be very very appreciated! I just want her to be as comfortable and happy as possible during the time she has left. The dex made her really figity and she was organizing everything, but now she just seems exhausted.....Any advice is welcome!!