Sep 23, 2012 - 6:55 pm
Welcome to our little EC family. I am moving your post to the top under a new topic so it will not be missed at the end of a string of posts.
You posted on Sun, 09/23/2012 - 5:35pm
My husband had stage one cancer three years ago. He had surgery to remove the esophogus and had his stomach streched to be his esophogus. After the first surgery he had an infection and had a second sergury a "C" cut in his back to clear the infection. After that he had a leak and was on a feeding toob for several months. His sergon than place a stent to block the leak and it worked. Two years later he started experincing pain in his lower back after meals. The Doctors did not seem to be concerned with this pain. He began to eat less and less because he was afraid of the pain returning. He went to see his oncologist last year and after a CT scan they found a tumor on the outside of the stomach where the first sergury and where the stomach was attached to the esophogus. They also did an endoscopy and nothing showed up. My husband went through chemo and radiation and was again on a feeding toob. This past February all the chemo was done and he started to feel better and even put on some weight. Three months ago he started having the same back pain and had endoscopy and pet scan and nothing showed up, doctors just perscribed narcotics for the pain. Nothing worked and the pain keeps on getting worst. His Doctors do not know what it is, he has lost weight down to 100 lbs his origional weight was 164 when all this started. He is in the Hospital since Thursday because he was getting very weak and allucinating. I don't know where to turn at this time and looking for any suggestion from anyone. I have no faith in Doctors at this time. Help me and my husband.
It certainly sounds like something is very wrong. If the tumor on the outside of his anastomosis, (the point where his resected stomach was attached to his remaining esophagus), was completely eradicated by the second series of chemotherapy then I would expect his symptoms to be eliminated.
It now sounds like the same symptoms are back again and the fact that they do not see anything with an endoscopy, and a PET scan shows no unusual uptake in the area, seems to rule out a recurrence. It would seem that your husband's doctors should be looking at other tests to define what the problem might be.
I am certainly not a medical professional, but I would be asking:
1. Has a whole body CT scan been done to see if any physical abnormalities show up?
It also seems that they should be able to do a better job of pain management with medications other than, or in addition to, narcotics.
It sounds like you have questions about the competency of your husband's current medical team, perhaps it is time to get a second opinion from a major medical center that specializes in esophageal cancer. If you tell us where you are located we can suggest the nearest major center where your husband could get help from medical teams that are specialists in the treatment of esophageal cancer.
Where is your husband being treated now?
If you can give us a bit more information we are certainly here to help you.
DX 10/22/2009 T2N1M0 Stage IIB
Life may not be the party we hoped for, but while we are here we might as well dance!