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And the first scan results are in........
Update - I am a stage 3B with 3 nodes (signet cell also) no mets. That's where I started.
Alice
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Thanksjanie1 said:Good for you, Alice!!
Enjoy the road to complete wellness. I don't know where you live, but enjoy this gorgeous weather taking long walks, or whatever your plan is.....best season of the year.
Wow - you made it through the whole 12 treatments.
Live in NC and it is beautiful here. I walk every day. Fall is my favorite time of year.
(Originally from Queens, New York). -
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Wonderful news Alice. It is
Wonderful news Alice. It is so reassuring that things can go well... I am also 3B (signet ring cell) with 4 nodes.... No mets. I am in the middle of my 12 treatments... I go in for number 5 on Tuesday. How bad is your neuropathy? I am really starting to feel the effects this week.... My dr talked to me about possibly changing the oxaliplatin if the neuropathy gets too much for me.
Alex -
Hey AlexMaxiecat said:Wonderful news Alice. It is
Wonderful news Alice. It is so reassuring that things can go well... I am also 3B (signet ring cell) with 4 nodes.... No mets. I am in the middle of my 12 treatments... I go in for number 5 on Tuesday. How bad is your neuropathy? I am really starting to feel the effects this week.... My dr talked to me about possibly changing the oxaliplatin if the neuropathy gets too much for me.
Alex
I remember when you just started. Glad to hear you are half way. Neuropathy is on feet, hands, teeth, tongue and lips. It was the worst by the last chemo (8/23/12) when I was "full" of chemo. I also received the calcium/mag drip before and after treatments that did help alot. It is always there, just at different levels of pain/irritation. I am at the point that if I have to learn to live with this and continue to be cancer free - I will. I always say it is bad, but could be alot worse. Best to you - keep me posted on your progress. Also the signet cell part of my journey made me insane at first but I have calmed down to realize it just needs to be followed closer (CT Scans / every 6 months for first 3 years, then annually). It is not common/uncommon per say. Careful about reading internet stuff about signet. Older out-dated info is invalid. Alice -
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Thanks Alice... I ammarbleotis said:Hey Alex
I remember when you just started. Glad to hear you are half way. Neuropathy is on feet, hands, teeth, tongue and lips. It was the worst by the last chemo (8/23/12) when I was "full" of chemo. I also received the calcium/mag drip before and after treatments that did help alot. It is always there, just at different levels of pain/irritation. I am at the point that if I have to learn to live with this and continue to be cancer free - I will. I always say it is bad, but could be alot worse. Best to you - keep me posted on your progress. Also the signet cell part of my journey made me insane at first but I have calmed down to realize it just needs to be followed closer (CT Scans / every 6 months for first 3 years, then annually). It is not common/uncommon per say. Careful about reading internet stuff about signet. Older out-dated info is invalid. Alice
Thanks Alice... I am starting to feel more comfortable with the signet ring part. My dr seems to think that they pretty much got everything in surgery. I am still going to seek out a second opinion. I have a dr at NIH that is willing to see me. We just have to wait a few weeks.
My neuropathy is mainly in my hands and tongue and lips right now. I use my hands a lot... So it is more noticeable ... We will se how this week goes and then decide about changing the oxaliplatin. I can live with it if I have to.... If this protocol is more aggressive/appropriate for my situation. I have had heart issues in the past .. So the avastin is a concern ...have not really talked about it with the dr. I am thinking that maybe they can just cut back a bit on the oxaliplatin. I did ask about the mag calcium drip...right now I take 3 calc/mag pills per day which is supposed to also help.
I'll Keep you posted on my journey.
Alex -
Second OpinionMaxiecat said:Thanks Alice... I am
Thanks Alice... I am starting to feel more comfortable with the signet ring part. My dr seems to think that they pretty much got everything in surgery. I am still going to seek out a second opinion. I have a dr at NIH that is willing to see me. We just have to wait a few weeks.
My neuropathy is mainly in my hands and tongue and lips right now. I use my hands a lot... So it is more noticeable ... We will se how this week goes and then decide about changing the oxaliplatin. I can live with it if I have to.... If this protocol is more aggressive/appropriate for my situation. I have had heart issues in the past .. So the avastin is a concern ...have not really talked about it with the dr. I am thinking that maybe they can just cut back a bit on the oxaliplatin. I did ask about the mag calcium drip...right now I take 3 calc/mag pills per day which is supposed to also help.
I'll Keep you posted on my journey.
Alex
Alex, Did you ever get that second opinion?
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