Sep 19, 2012 - 2:37 pm
I just want to offer you a word of encouragement. I was in your exact same shoes in mid-June of this year. My boyfriend of 6 years was diagnosed with Stage III EC, a result of long term acid reflux that was not treated properly. (i.e. watched over time for Barrett's and endoscopies ordered to track). Of course that is all water under the bridge, we can't go back and change the past. We were overwhelmed when we got the diagnosis, and I found this site early on. It was a godsend. Alot of the people who initially helped me have left, but there are still some great people here that are ready, willing and able to help you navigate through this really tough time.
As Dave was stage III, he had 5 weeks of chemo and radiation, and surgery is set for Monday morning, October 8th, at Johns Hopkins, to remove what is left of the tumor. It was an arduous process, but he got through it. Right now we are enjoying the calm before the storm, as the operation is complex, and recovery rigorous. But don't despair, it can be managed. My best suggestion to you is to find a hospital that deals with Esopahageal cancer. Your local oncologist is not equipped to deal with this particular cancer. They may mean well, but you need the "big boys" in dealing with this. You'll want to look for places like Johns Hopkins in Baltimore, Univ of Pittsburgh in PA, Duke, Mayo Clinic, Univ of Michigan, those types of big, teaching hopsitals. Your community surgeon may be great for taking out a gall bladder, but doing an esophagectomy? Not so much...
Dave just had a PET scan on Monday to determine if the chemo and radiation did its job this summer, and I'm happy to report it did! We are going into surgery feeling good.
If I or any of us others here can be of help to you, please don't hesitate to send us an email through the CSN site. We care, and we've been through it. We'll be glad to help!