Sep 18, 2012 - 1:25 pm
I was diagnosed with MMMT 1A in June of 2011 at 45 years old - complete hystorectomy followed by chemo and radiation. I only did 2 rounds of chemo because of extreme negative side effects - lots of blood transfusions etc. I was then NED until 7/2012 when I had extreme back pain and could not walk. Found I had a tumor the size of my hand in my lower back that was invading the spine. Had radiation & heavy doses of steroids which gave great relief by shrinking the tumor and reducing inflamation. I can now walk with a cane. They had also found 2 small tumors in my lungs which disappeared after 2 or 3 treatments of radiation. 4 weeks after the radiation we had a follow up scan - and found that I had a new tumor in my lungs. My oncologist had warned me that once it reaches my lungs - its game over - we lose the battle. I took a much needed vacation for a week - when I returned for radiation on that lung tumor the day I returned - they found it had grown and was too close between a rib and my heart to treat with radiation and now the cancer seems to be peppered throughout my lungs.