Sep 18, 2012 - 5:59 am
I have been a bit down today, not usual for me.
Had the most detailed consult, a few hours on and off with my top alt doctor while getting vit c.
so I have lost 7kg of muscle in 7 months. I attribute this to the vegan diet, maybe my implementation of it. they did the caliper test and bmi stuff, its pretty scientific.
so now I am on the ketogenic diet and trying to play catchup with muscle. the tip today for me is to have the digestive enzymes before the meal.
after the meal i will take a couple of stomach acid pills ie pepsin pci . basically the goal is to activate the enzymes in your small intestine, where absorption is supposed to occur and not have the enzymes activated in the stomach.
I have committed to starting ukrain therapy getting ready which has a benefit around surgery. The trick with ukrain will be to get it hyperthermically, which believe it or not is an option now i have a far infared sauna.
But we alt doc and I decided to wait until I see hipec surgeon 8am tomorrow so i will know the result of the consult and if i am eligible for hipec. I am bringing a dear friend along as well as wife as this consult will be a biggy.
If have been contemplating chemo which was suggested 5fu/avastin , now having seen pepe and others results. i have some comfort that whats been recommended might indeed work.
at 5pm i see another oncologist who is at my local hospital, where the hipec professor is located. so i will see his advice and go from there.
To me it seems to come down to chemo strategies, 5fu/avastin or folfox/avastin, basically the softer versus the hard option. with advantages and disadvsantages.
its a gamble either way, still keeping all the healthy options going but adding conventional soon i think.
the responses to my enquiries in india and germany have been dissappointing to date, ie not enough detail and non existant. so if they cannot reply to an email from a customer, what care can you expect as a patient.
just wanted to share where i was at.
its been 18 months since i finished folfox. I still have the platinum.
I spoke with an alternative guru and her advice was to call her after the surgeon consult , in a nutshell i have to play hardball either hipec or gersin. ironically this alt guru knows of a personal hipec success, now my alt doctor today shared the fact that he has not treated a successful gersin patient. not saying anything, other than thats my alt doctors comment. so i am inclided to surgery if its an option for me.
I have a few possible treatments I can access, tomorrow will be a great day.
ps maybe all the natural therapies need a little help. the survival boost adding avastin to the 5fu mix is complelling.
so i saw the top hipec surgeon professor morris, he has done 650 hipecs, he is doing the workup ct scan and i may formally be on the list as of monday, god willing.
so the focus is on gaining weight and and getting ready for surgery.
I walk outside of the prof office, looked up at a beautiful blue sky and some tress in the big hospital grounds and almost cried.
I also started ukrain today. i got my cea back 81, so its up 14 over 5 weeks ouch! still no chemo pre op, they will likely fast track me.
godbless us all, i have more empathy for my stage 4 friends here now. sorry i have been so gunho about all the alternatives, not saying they all don't have merit, but the reality of chemo is challenging for me. i will have 6 months post op chemo likely irenotecan of folfox.
I still have to be formally accepted, but i at least got my foot in the door.