So happy to see so much good news! Hoping I can add to the joy next week! I was originally scheduled for PET this week but asked doc to give me one more week to cool down. So I get PET next Wednesday and results on Friday.
This whole process is so bizarre. One one hand, I cannot imagine anything other than living a long healthy life. I mean literally I cannot imagine it. I have trips planned for October, April and May. I have started back to school (enrolled the day after I finished rads lol). We are almost finished building our house and I already sent out invitations for a Halloween party. My creative juices have even started flowing again. My stamina isn't great and I spend most of my day eating, eating, eating but mostly it's just back to business as usual.
Then on the other hand I worry that my treatment and recovery has been too easy so how effective could it have been?
I guess that's what cancer does...
Here's my progress report:
-I have about 20% of my taste back I guess. The first 2 or 3 bites taste almost normal then it drops wayyyyy off. But it's enough to make it tolerable.
-I have gone out to eat twice. I find that salads with ranch dressing are a safe bet. Also the spinach dip stuff with tortilla chips works for me. (Yes, tortilla chips.I never would have thought that 6 weeks out I would be able to eat tortilla chips.)
-Seems like I am the exact opposite of what everyone else experiences. Tomatoes don't bother me, fresh or processed like in chefboyardee or whatnot). Can't eat bananas because they burn but canned mandarin oranges dont bother me. Meat tastes really good.
-My favorite thing to eat so far is Stouffers Pepper Steak or Ball Park Angus hot dog on white bread with mustard and ketchup (take off crust or its too much bread but I think the bread is what keeps the condiments from burning.) Also, salad. Lettuce, tomato, cucumber, carrots, bacon bits, ranch dressing. I want to try the yellow bell pepper but they are a little expensive to try just yet.
-Still can't taste anything sweet.
-My water stared tasting funny again and it lasted about a week but I found that Crystal Light peach tea is pretty good.
-I no longer have the spit that never disconnects from your lip.
-I no longer spit out massive quantities of white foam. I had nicknamed myself The Foaminator for a couple weeks.
-I have the wrinkles of a 70 year old smoker on my chin now.
-Today is day 12 of taking nothing in my feeding tube other than water to flush it!
Probably TMI, as usual, but I feel like I'm doing pretty good and it might be helpful for some of the new kids on the block to see what's up.
Wishing everyone a NED day and the best of everything!