Sep 13, 2012 - 3:57 pm
I am scared of tomorrow. I must sound so silly, but I really could use your advice.
I have had many many transfusions in the past, but with a different doc taking care of me and setting it all up. Every time I have received a unit of blood, I would receive as a pre med, tylrnol and i.v. benadryl. Then after each unit i would receive i.v. lasix to lessen the chance of fluid overload and all the bad effects that can cause.
Tomorrow I am receiving at least two and possibly three units. The onc who dismissed me yesterday is the one who set it up. It also could have been the partner onc who set it up, I have no idea. I mentioned yesterday about the pre and post meds and how I always receive them. She seemed surprised and didn't give me any sense of security that I will be receiving these meds. I am really really scared of tomorrow morning. What if I get there and they tell me that nothing is ordered except the blood, I don't know if I could continue. I have a history of bad reactions to many meds, including anaphalaxis. The risk seems so high to me. I don't know what to do.
I did talk to my neighbor who is a doc and he said that if I was his patient he would make sure I had the pre and post meds. Especially the lasix since I already have to much fluid on board from the swelling.
I have a call in to my pcp to ask him what to do, but since he does not have admitting rights at the hosp there is little he can do. Which is why the onc is in charge.
I am just so scared, I know that I need the blood to kick start my marrow, but what if there are no meds ordered. I don't know what to do.
What would you do? What should I do? I could continue to wait it out and try to find someone else to be in charge. But the physical symptoms are many and I am just so tired.
Any thoughts or suggestions would be great.