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Radiation recall

taraHK
Posts: 1961
Joined: Aug 2003

I had radiation for a breast met several weeks ago (who gets breast mets from colorectal cancer?!?). Just finished 3 days of chemo yesterday. Noticed I had a VERY red 'burn' on the radiation site. According to my oncologist (whom I texted last night and saw this morning) it's something called radiation recall. Chemotherapy can trigger a 'burn' on an 'old' radiation site. He has only seen one case previously in 20 years of practice (although my websurfing last night suggested it might be more common...). I am using heavy dose steroid cream 3x day. Will have to go on systemic steroids if it get worse. I am on both Gemzar and Oxaliplatin -- which apparently can both cause. My onc is guessing it's the Gemzar, although his last patient who had it, it was oxi.

Has anyone else had or heard of?

Why do I always get the weird stuff?!?

Tara

steved
Posts: 836
Joined: Apr 2004

You are a medical marvel- never heard of either breast mets or radiation recall. You should write yourself up a case study for an colorectal journal;)

Steve

taraHK
Posts: 1961
Joined: Aug 2003

My oncologist is in the process of writing me up for a case study! I thought it was going to be about my blood pressure crash to Gemzar or my allergic reactions to Oxiliplatin but I guess this would make a nice footnote!

Tara

steved
Posts: 836
Joined: Apr 2004

My team are also looking to write up my case if my surgery goes well and so I have asked to be an author on the paper (as a doctor is always useful to have a range of publications but there is no reason whynonmedical patients shouldn't be recognised as an author though it does mean it is no longer anonymised).

Isn't it great being a medical marvel!? at least it keeps the docs interested in us :)

Steve

maglets's picture
maglets
Posts: 2417
Joined: Jun 2006

no Tara I have not heard of it.....just wanted to say hi...my reaction to 5fu was written up but that was 7 years ago.

wishing for smoother sailing for you girl

mags

Sundanceh's picture
Sundanceh
Posts: 4306
Joined: Jun 2009

Congratulations on being written up for your cancer cases. That is such a terrific thing to be a part of.

On a much smaller scale than either of you, I ended up being the first patient here in North Texas to do the da Vinci robot surgery on the lung. It resulted in a brand new 1.3 million dollar da Vinci robot to be installed at the hospital.

And of course, it broke ground and gained accreditation for the surgeon, who was given his certification for performing the surgery on me. It was big for the hospital, because it offered something new.

And it opened up doors for other patients to have access to that surgery as well...a win-win for everyone. They wrote up the story in their medical magazine...paper did a local story...tv did a local story.

So, it was nice to serve in that capacity and to feel like you were being a part of the greater whole. It pales in comparison to what you guys are going through, but it was a part I could play - at a time that I could play it.

It was just an honor to be a part of it all...and it is for both of you as well. And Steve, to be able to author...just knew you'd get published before I would:)

You guys are the ones - like it or not...you're both it.

Congratulations again to you both and best wishes for a successful outcome.

And Tara, Steve already said it..."you're special."

I watch with amazement at the things you have done...if anything else happens to me that I can't deal with...like it finally makes its way to my brain...I'll be looking to you...actually, I've been looking for quite awhile now.

-Craig

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

You a big Hug!

tanstaafl's picture
tanstaafl
Posts: 977
Joined: Oct 2010

"radiation recall" sounds like cumulative tissue stress and depletion from the different modalities, the combined toxicity of chemo and residual radiation changes. Cells barely making it then chemo treated show some visible damage.

YoVita's picture
YoVita
Posts: 554
Joined: Mar 2010

I have not heard of radiation recall but thanks to you I now know what it is. Hope your team can resolve it for you. Thanks for sticking around and sharing your experiences with the rest of us.

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