Sep 10, 2012 - 3:53 pm
So scared. I just read my CT/PET scan and am terrified. i have had three lung wedge resections with only one or two removed by vats surgery. My last episode has been going on since last year when I had 3 1/2 ribs removed on my right side due to tumor seeding from prior surgery. With this last surgery (4/24/12), the surgeon did another lung resection but there was stuff left behind. Could not get it all. My specialist said 10-15 spots on 8/1/12. I am now with a new cc specialist and have just had a CT/PET scan and I just read the report. I cannot believe this. My specialist is in Rochester and my hometown oncologist still has not started chemo. I cannot get a hold of her ever and the nurses give me information one time which is ok and then i get a call from someone else and they either don't get the right info or are giving me incorrect info. I just can't believe this!!
Has anyone else had this happen to them with this many lung mets? Could you please tell me your stories and advise me what to do?