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Friday update

forme's picture
forme
Posts: 1161
Joined: Aug 2010

Hello Dearhearts,

Here is the lastest news.

I am feeling like the pain is under control, still have it, and the occasional break through pain but it is managed well with this new pain dosage. I think I am headed in the right direction with the pain. I even have times when I take a little less pain meds. Hooray..

I am having trouble remembering what all I have told you. So if I am telling you this again, please forgive me.

I had my labs drawn last friday and thought I would have the results by tuesday. They were ordered as a STAT. But I never heard what the results were. Turns out the doc did not receive the results. The cancer center dropped the ball and did not send him anything! So typical of them. So yesterday his office had to track the results down. I still don't have them, but will by the end of today. I am feeling really hopeful that my counts are on the rise and I won't need to get transfused.

I have some new issues that are concerning to me and my doc. I have an appointment today at 3:30, so I'll know a lot more + the lab results.

I have some bad swelling of my feet and ankles and one leg seems more swollen. Also my tummy looks swollen again, not as bad as it was right before surgery, I looked six months pregnant then, but still I can see the swelling. At first I thought it was just swollen from the surgery, but now I know it's more that that. Also gained 7lbs in one week. This is scary since I still am eating like a bird. Doc believes the weight gain is all the edema I have. That makes sense.

I also have had some new scary chest pain. This has happened a few times. I even had considered waking up hubby one night because it would not lessen and I was getting scared. It did get better and I was able to fall asleep. I put in a call to my onc and pcp and still have not heard from the onc, but did get a call from the pcp last night. We talked for a long time and I'll see him today.
He thinks that it is one of three possible things.
Either it is my heart, my kidney or my liver.
I will need more lab work and also an echo cardiogram. These are the least invasive and easiest ways to start looking for an answer.

I'll try to update you this evening about the doc visit.
I feel like I take one step forward and two steps back. I am so ready to just move forward.
Please keep the positive thoughts coming my way. This new set of problems are scary.
It's so hard to feel strong and brave when I only feel so tired. I think if I had some of my normal energy and strength, I would be able to deal with these new issues a lot better.
I am trying.

I know that so many of you are going through so much right now. I send you hope and hugs that your days will become easier.

Always thinking of you
Lisha

allmost60's picture
allmost60
Posts: 3183
Joined: Jul 2010

Hi Lisha,
I'll be anxious to hear what you find out today. Sounds like you have a few new things to get to the bottom of...stay on it! Happy to hear the pain is more manageable...at least now with that somewhat under control, you will be able to tolerate further testing a bit easier. Let us know what you find out. Hang in there(I'll write more after we hear back from you)...Love you...Sue

jimwins's picture
jimwins
Posts: 2101
Joined: Aug 2011

Hi Lisha and so good to hear from you.
I'm glad the pain is getting under control and that is good news :).

I'm so sorry you're having issues with edema and hope they get to the root of it.
Please let us know what you learn today.

Sending rays of warm, positive sunlight directly to your heart and soul
and of course a gazillion hugs too,

Jim

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