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New Blog Site esophagealcancerfighters.com
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Sep 06, 2012 - 3:59 pm
All, Since the facebook site has limited ability to store historical stuff I am starting a new blog site to upload historical information and reference materials deleted from this site. I hope that people will provide critical information and participate in this site. It is esophagealcancerfighters.com and the email address is ECFIGHTERS@gmail.com. It will take me a few days or a week to get it up and running and I am hoping for contributions posts - I am checking into how to set up a running comment section as well as Q&A's. I am not a tech person but hopefully will be able to get some assistance and support. I would ask that you send any files you have that you think should be included in the library to the gmail address so I can upload them onto the website. I have already paid for a year of service with dream host and am in the process of setting up a WorldPress.org account to help in designing the site. I remember how essential the INFORMATION on this site was when we were fighting my dad's cancer, not to mention the support and concern and just knowing people got it. And yes sometimes I got my feelings hurt or didn't want to hear the message but I got over it and I took the best from here and forgot the other stuff. I just don't want it to be lost because it isn't CSN that makes this place special its the people that come here! Anyway - please message me at the gmail address. The email here is neither private nor your own and subject to deletion by the administrator/monitor. Cindy - ECFIGHTERS@gmail.com |
Joined: Jul 2012
from an IT perspective.
We can put information on the Ecaware site, if needed.
Just a note on the IT side. There are some wonderful people trying hard to get EC information out to others on a few sites and discussion boards.
Overall on the worldwide web we are a small group. If you make a site, please try and add some links to the other sites. People can make their choices what to read, but mostly, trying to help that no one feels alone. The web is a good way to stay in contact additional to small in room support groups.
There is still work to be done to get google searching working better for EC, so links do help for now.
Joined: Jan 2010
Absolutely - great suggestion. I was intending on trying to link to ECAN and other sites including some of the hospitals. MD Anderson, UPMC, Hopkins, MAYO, SLoan and others as well. Some of this will take some work but hopefully we can link people to the Cancer Institute. Any sites or links or suggestions as well as feedback are welcomed.
Joined: Aug 2012
I just went to esophagealcancerfighters.com. Of course the site is still "under construction" so to speak but I did add it to my favorites and will check back everyday. I have a little expertise with websites (not a lot but a little) and lots of time if you need my help Cindy just say the word.
Len