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Thyroid Ultrasound

Survivor29FL's picture
Survivor29FL
Posts: 7
Joined: Feb 2012

I will be going in the next few weeks to see if the nodules in my thyroid have enlarged enough to biopsy and I am very nervous. I was diagnosed with stage 1 grade 2 chromophobe this year and had a partial nephrectomy. I see on here where people keep saying that it is rare for this cancer to return, but I also see where this type of cancer lives in the blood, or stays in you and can return later. I read stories about people with the same type, grade, and stage who have it return and I can't help but feel as though I am not "CURED". I know as far as cancer's go and illness in general I was lucky, and I am grateful. I am also, scared out of my mind that this will return. I was 29 when I was diagnosed. Can anyone tell me if it is common for this to return when found at a younger age, and if it is known to return in the thyroid?

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

The approach your medical advisors are taking sounds sensible - to make sure you know what you're dealing with. How large was your original tumour?
RCC can spread to any organ in the body but the thyroid is a rare destination so I'm guessing that further investigation will show that what you have in your thyroid isn't mets from your RCC.
Being detected early and with stage 1 grade 2 chromophobe is very good news and makes it look still less likely you have a recurrence. I do have a little knowledge and a strong personal interest in your diagnosis. I was diagnosed almost a year ago, at 40 years older than you were at dx, with a large chromophobe tumour that was stage 4 and grade 4 and had already undergone the worst kind of pathological changes. So far, there's no sign of distant mets anywhere in my body; a further check will tell me in about a week's time whether my luck has held. I hope this comparison helps you to feel optimistic about your prospects.

Please don't pay undue attention to the irrelevant parts of this brief paper, but a good recent, short report of a study on the subject can be found here:

http://ar.iiarjournals.org/content/29/2/473.full

I hope the investigation shows that you don't have much to worry about and that it can be easily sorted out.

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