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Date and plan

steved
Posts: 836
Joined: Apr 2004

Back from meeting with a roomful of surgeons, oncologist and various hangers on and finally have a plan for surgery. For those that don't know I had rectal cancer in 2004 with recurrence last year. After various treatments was told there was no curative options and moved onto a palliative regime. Then a new publication of radical surgery was published and the local team thought I might be a candidate. It is clearance of all pelvic organs and a hemipelvectomy-taking off half the pelvis and leg. Have spent the last month or so being rescanned and fighting beaurocracy and now have a plan.

Will be admitted on the 17th and operated on the next day. A surgeon from Denmark is coming in for four days as no one in this country has done the op so he will mentor them. It will start with looking at para aortic nodes which if involved marks the end, but if not they will proceed over a number of days keeping me asleep. I will be in. Itu for some weeks and hospital for 2-3 months. Mobility will be by wheelchair or crutches for first six months but might have a chance at a prosthesis after that.

I feel ready and now want things to start. I accept it is a huge cost but it is my only chance at a long term cure (yes I am using that word on this board). They can't quantify how likely that is but it is a real chance but so is considerable morbidity and complications. At present my leg is getting sorer and weaker quite quickly and I am already on quite high dose morphine. I still work full timeout my quality of life is dismissing and will only continue to do so without something radical.

So that is the plan. It is as definite as it can be (I'll only truly believe it is going to happen when I am on the table) and feel it is the right decision. I am of course also terrified but mixed with hope that feels tolerable for now.

I welcome your thoughts and supports,
Steve

relaxoutdoors08
Posts: 521
Joined: May 2011

You will be in my thoughts and prayers. For all of us who are here to learn about all possible treatments for this disease, I thank you for being courages enough to step forward for this radical surgical treatment. We will be with you in spirit and support every step of the way.
Prayers as you have made the first step. Prayers for you and your family as you take each step towards the altimate goal SURVIVAL
Prayers,
NB.

JohnsIsland
Posts: 9
Joined: Mar 2012

Steve,

You will be in my thoughts and prayers. I hope you have a speedy recovery.

Jeff

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

one suggestion is to see the best naturopath in town. they may have some suggestions re diet post op, and supplementation. i healed very well with supports collagen pro etc etc, its possibly to late for full biological analysis, but if i were having your op, i would be in peak shape, at least all insufficiencies addressed. but no doc will go that far.

the metametrix porphorins test is a good test.

but just relax and breathe and smile.

i'll give you that hug one day in real life!

hugs,
pete

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

x2 wishing you the best. This is a huge one. Surgery in my opinion is always best option to rid the beast. Seems you have excellent team there. Where you having this done at?

steved
Posts: 836
Joined: Apr 2004

Thanks for the message. Will be remaining disappointingly mainstream and conventional in my approach to this operation. Simply don't want to muck with anything uncertain while my body is being thrown into chaos. My approach has always been boringly moderate and is likely to remain so for now. Do feel in quite good shape though as no weight loss, still get to the gym a couple of times a week and feel fairly healthy.

The hug I accept and as I often stop in aus on my trips back to no may one day get the real thing.

Steve

Varmint5's picture
Varmint5
Posts: 384
Joined: Feb 2012

Best wishes to you, Steve. You are a very brave man. Prayers for a successful outcome for you.

Sandy

MrsJP
Posts: 157
Joined: Jan 2011

..and your family. Sending thoughts of peace and hope. Will keep you in my prayers.
God bless
jp

spainmum
Posts: 29
Joined: Apr 2012

Steve,

I will be thinking of you on the 18th, I send you and your family the strength to face this and hope a total succes on the surgery and a good recovery.

I want to say thank you to you and others in this site that share the experience and knowledge on this disease, I don't post much because is dificult to me to express my feelings in english, but I read most of the posts and I love this site, until I found it I was lost looking for information.

And I want to say that yes I think you and others on this site have courage to force, but what made the difference is that site where all of you give the answers others need.

Hugs, Celeste.

dmj101's picture
dmj101
Posts: 527
Joined: Nov 2011

Positive energies and light coming you way.

I admire your strength thru this journey so much..
It must have been hard to come to terms with this proceedure but it this a possible of LONG term cure.. hey you need to take the chance don't you..

Wishing you much love and support and strength...
Take care and keep us posted ..
Donna

Luckygirl2
Posts: 308
Joined: Mar 2012

in my thoughts and prayers on the 17th or would that be on the 16th or 18th here in Arkansas! You are the bravest person I know, I'm not sure I would have the courage that you do. God bless to you and your family.

thingy45's picture
thingy45
Posts: 584
Joined: Apr 2011

Go Steve Go, you are in Gods hands and just the idea that you could be mobile again and without pain is worth it al. Go for it.
My thoughts and prayers will be with you on the 17th. I admire your strength and to be able to let the dokters do what they think is best.
With all of us behind you it must be succesfull
Many hugs and good wishes for you and your family,
Marjan

Aud's picture
Aud
Posts: 476
Joined: Oct 2009

You are a brave soul. I wish for you strength for your upcoming surgery. I hope so much for the cure that you are working towards. I am holding you in the Light for healing and strength.
~Audrey

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

glad you have a plan. i admire you for making such a hard decision & still have a positive attitude. we all have to do what ever it takes to save our life! i wish you the best & you & your family are in my prayers every night.
hugs
judy

Kathleen808's picture
Kathleen808
Posts: 2313
Joined: Jan 2009

Steve,
In regard to my thoughts, all I can say is you are a brave man and your love for your family is incredible.

I will stay in prayer for you.

Aloha
Kathleen

Fight for my love
Posts: 1312
Joined: Jun 2009

OMG,after reading your post,I have to take a deep breath.It is never a easy decison.Best luck and best wishes to you and your family.Please come back safely.You and your family are in my prayers.Take care.

RickMurtagh's picture
RickMurtagh
Posts: 534
Joined: Feb 2010

Good for you Steve - fighting for a chance at a better life - even though it is at a great cost.
Seems you are at peace with your decision, so all I want to do is encourage you.
Here is to a possible cure and a second chance at life.

best wishes and peace

Rick

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