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The Song Remains the Same -- Update

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

When I was admitted on Tuesday, they did some chest x-rays. Some more were taken yesterday and there's no change in the pneumonia or the blood clots. You'd think after that many days of heavy antibiotics and blood thinner that there'd be something. We still haven't got the results from the Bronchoscopy they did one Wednesday so my guess is that they have to culture and grow them for a few days.

Sleep is pretty much catch it when you can and not just because of the staff. Sometimes I can barely stay awake, others I just can't sleep thanks to some not very good thoughts. Eating, one of my favorite activities, is an arduous task thanks to no appetite. All I could manage this morning was yogurt and boost and it was hard enough forcing that down. Don't know what to do about lunch and dinner. I'm only bothering because I know that I have to eat to get better.

Having Lulu here with me is beneficial not only for my spirit but my body as well. Taking her out for walks helps the blood flow and helps increase my wind. Of course by time I get back I'm huffing and puffing like the big bad wolf!

Thank you all so very much for the prayers, thoughts and kind words. Reading them really elevates my mood and puts a smile on my face such that the nurses wonder what I'm up to. I'll keep you informed.

Ray/Doc

Cathleen Mary
Posts: 556
Joined: May 2011

Doc, So sorry that you are having such a time of it! Pneumonia is insidious and can really deplete energy. I bet everyone is enjoying Lulu...how wonderful that you can have her with you.
Know that prayers and good thoughts will keep going your way. We've got your back. Thanks for posting and keeping us updated even when you feel so miserable.

Hugs,
Cathleen Mary

JayhawkDan's picture
JayhawkDan
Posts: 206
Joined: Apr 2012

and get out of the hospital asap. Good vibes coming your way. Dan

wolfen's picture
wolfen
Posts: 1192
Joined: Apr 2009

So sorry it it taking you so long to kick this. I was going to reply yesterday morning, but this forum is soooo slow at times. I had been up all night when reading your post and saw you mention having beer at home waiting for you. For some reason, my brain processed that as having "bear" at home and I thought, "I didn't know Doc had a pet bear". But then as I read on about one of your lady friends and bad moods, maybe my interpretation wasn't so far off. LOL

Hoping brighter days will soon be here for you. Give Lulu a big hug from me. She is a special little lady.

Luv,

Wolfen

smokeyjoe
Posts: 1428
Joined: Feb 2011

Awwww buddy, I have not had pneumonia, but I did have two large blood clots in both my lungs. Having pneumonia on top of blood clots I cannot begin to imagine. But, with the blood clots I was sooooo winded, walking up stairs was so tough. I feel for you. Blood clots take many many months to resolve (ask the nurses or docs...they'll tell you) Don't expect blood clots in your lungs to resolve in a week or two.....they didn't want to do surgery on me for several months, till the clots resolved, p.s. my colon was completely blocked at the time, and they were talking months down the road for colon resection!! Hang tough....it's gonna take a while.

annalexandria's picture
annalexandria
Posts: 2193
Joined: Oct 2011

one of the hardest things about being in the hospital for me was leaving my dog and cats behind. Oh, and my kids, of course. Can't forget about them. :) Have they talked about giving you TPN for a while? I was on that for about a week during one hospital stay, when I just couldn't get enough solid food down. It's a rather disgusting fluorescent yellow, but it did the trick. Didn't even lose any weight, even though I was in there for two weeks (darn it). Hugs to you and your little dog too (NOT said with a witch-like cackle). Ann Alexandria
PS If you like history, have you read Devil in the White City, Lost in Shangri-la, or 1776? All very good reads.

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Hey Ann, no I don't think I've ever heard of TPN, what is it? I can eat, it's just that I have to force it down. Even then, the best I can manage is half of what's on the plate.

Lu is definitely the darling of the floor. Even as shy as she is, she still manages to charm the staff, man and woman alike. If she wasn't so shy, I'd offer to take her around to visit other patients.

I haven't read the first two books you mentioned, but I have read 1776. My primary focus in History as been the American Civil War and my secondary is East Asian Studies. I'm fascinated by the Japanese and Chinese cultures. I'm currently reading The Pillow Book, a Japanese book that was written in the late 10th early 11th century which pre-dates Chaucer and is a possible contemporary of "Beowulf".

annalexandria's picture
annalexandria
Posts: 2193
Joined: Oct 2011

Pets really do brighten things up a bit! I'm not sure what TPN stands for, but it's basically IV feeding. You can still try to eat food by mouth but it will give you supplemental calories if you need them. I haven't heard of the Pillow Book...I majored in medieval history but the focus was on western Europe. I really should learn more about the history of Asian cultures. It's a big hole in my education. If you like American history, I would definitely suggest trying "Devil in the White City"...it's the story of the Chicago World's Fair, the man who created it, and a serial killer who happened to be active in the city at the same time, and took advantage of it. It's a pretty amazing conjunction of events and gives you a great sense of life in a late 19th century American city. Ok, taking off my librarian's hat now...I just realized you have an update, need to go see how you're doing!

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 445
Joined: May 2012

Total Parenental Nutrition - usually given to patients not eating at all. The Drs would rather you eat food than to start that and not eat.
Sandy:)

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

This crazy chemo brain drives me even more crazy...I couldn't remember who lulu was. Its good your up every so often. Pray you get well fast. Jeff

Luckygirl2
Posts: 308
Joined: Mar 2012

Thinking of you and wishing you well!

tootsie1's picture
tootsie1
Posts: 5003
Joined: Feb 2008

Praying you get better soon!

*hugs*
Gail

SharonVegas's picture
SharonVegas
Posts: 189
Joined: Feb 2012

Thanks for the update Doc. I've been thinking about you since Marie who loves kitties starting updating us. Hope you get better soon and I'm glad you have Lulu with you!

thxmiker's picture
thxmiker
Posts: 1213
Joined: Oct 2010

Get Better Ray!

We are sending thoughts and prayers your way! Eating is to much enjoyment not to do. lol

Best Always, mike

glinka65
Posts: 132
Joined: Feb 2009

hang in buddy!!!! your in my thoughts everyday!!!!

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

sorry to hear you are still having problems. it is wonderful that your dog is with you. i am sure she is glad too! sending lots of prayers your way!
hugs
judy

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

I know that she's happy to be with her daddy, but I think she needs a break and get to go home for a couple of hours. She'll stand in front of the closed door and look at me as if to say "can we blow this popsicle stand already?"

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

Get better soon! Hopefully you can find something appetizing for lunch and dinner. One night in the hospital i just had mashed potatoes and corn for dinner. Bland food with no after taste seemed to work best for me. I hope you can get some rest today.

Alex

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Yogurt, pudding and cereal are okay, don't have much trouble with them. It's more substantial meals that I just can't get through.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Sending well wishes from California and hope you can go home---well!---soon.
Tommycat

dmj101's picture
dmj101
Posts: 526
Joined: Nov 2011

Take if easy buddy.. we don't get sick overnight.. so no reason to assume we can get better overnight.. relax and enjoy what ever pampering they are ofering you there.
Your appetite will get better.. antibiotics definitely kill it.. opt for easy stuff if they give you the choice.. yogurt, juices, eggs, chicken and carrots, potato's.. don't expect too much.. and you will be fine.
Feel better soon..

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Well, I did a bit better on Sunday. The lung doc came in and reported that the x-rays yesterday showed improvement. He ordered a dose of Lasix, which of course turned me into the proverbial race horse! (Actually filled a 32 oz urinal in one try.)

I had a lot of visitors today but still managed to get up and sit by the window to read for a little bit. That was very relaxing and I'm going to have to try to get an hour a day doing so.

Later, in the early evening, my fever began to spike again, hitting a high of 101.7 F (38.7 C) and the coughing just wouldn't stop. The nurses were really busting their butts to get it under control and it finally did. The congestion is getting a little better and I'm currently on 5 liters of oxygen all of the time. I think in a little bit, I'm going to have one of the nurses walk with me and monitor my O2 level with and without the air tank. Funny thing is I've said for years I love to suck air out of a can, but I meant while under water!

That's about it for now. I have to wait until Tuesday when my onc comes in to see if I'm getting chemo this week. The floor I'm on is their Oncology Ward, so I can get it here.

Hugs to all and thank you very much for the prayers and thoughts.

Hugs,

Ray/Doc

annalexandria's picture
annalexandria
Posts: 2193
Joined: Oct 2011

I'm glad you're feeling a little better and getting a chance to read, but you've gotta do something about that fever! Keeping you in my thoughts and sending strength and healing your way-Ann

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Feeling not as well today. Definitely rasping in the lungs and they brought in a spirometer for after my breathing treatment. I failed miserably. She wanted me to get to 1500 on it and I didn't even hit 700. Already burning a low fever and room service messed up my breakfast! Ask for strawberry yogurt and chocolate boost, got peach yogurt and strawberry boost. C'est la guerre.

danker
Posts: 735
Joined: Apr 2012

As a former "Zoni" you have to beat this. Hope you are feeling better.

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Shortly after I posted this, I started to feel pretty bad and my temp jumped to 101.7 and stayed there for a couple of hours. They finally knocked it down with Tylenol. I'm feeling pretty drained, but otherwise okay.

Sonia32's picture
Sonia32
Posts: 1067
Joined: Mar 2009

Sending good vibes/prayers your way.

herdizziness's picture
herdizziness
Posts: 3395
Joined: Apr 2010

Sorry to hear you're still feeling bad, here's all the good vibes I can muster being sent your way. Glad you have Lulu with you to keep you company in the long hospital night.
Get well and get out soon!
Winter Marie

janie1
Posts: 753
Joined: Apr 2011

Thinking of you. Hope you feel better very, very soon, Doc.

smokeyjoe
Posts: 1428
Joined: Feb 2011

Hoping you are feeling better and they have that temp. under control. I was gonna suggest you ask for stuff that is not on the menu....I found I could ask for things like V8 veg. juice even though they didn't offer it on the menu choices (sometimes they can accomodate, you won't know till you ask). After surgery was done I knew veg. juice would get my bowels doing something. Ya don't want TPN, I was on that for several weeks because I had a tumor completely blocking my bowel, so I couldn't eat...no one wanted to do surgery because I had blood clots in my lungs.....getting fed through a tube that ran into a PICC line in my upper arm was not fun. Is Lulu still with you, or did she break out of the big house for a bit??

fatbob2010's picture
fatbob2010
Posts: 384
Joined: May 2012

Doc, sending prayers of healing and good thoughts of comfort for you as you kick this Pneumonia. I agree with others that the fever is concerning. Hearing that the nurses are working hard to help and you have Lulu with you is good news. Get Well and Get Back Home soon, Art

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

I'm still running a little hot, in the 99 range where my normal is about 97.5 give or take a few. Today I just can't seem to stay awake. Normally I'm a light sleeper, but the nurses were able to disconnect me from the pump without waking me.

After breakfast and shower, I took Lu out for a walk, with assistance of course, and we went up and around the building to the pond they have, then back in through the cafeteria. It was certainly an ambitious venture, but when we got back my oxygen absorption level was the same as when we left.

The onc came in this morning and said no chemo while in the hospital, so I won't have treatment this week. They don't want to over stress the system. One way that I can tell I'm not strong enough to go home yet is because I don't have the strength to flirt with the nurses.

Thanks for all the prayers, thoughts and well wishes and know that they're going back to everyone in kind!

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

i was happy to read that you are improving. i admire you for wanting to get up & get outside. it would be all too easy to not push yourself but you are a real trooper! you give all of us the inspiration to fight!
try flirting with the nurses so you get out of thare!!!
prayers for improvement
judy

mom_2_3's picture
mom_2_3
Posts: 937
Joined: Nov 2008

Ray,

I am so glad you are on the mend. Hang in there!!

Amy

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