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ccRcc diagnosed 08/03/2012

Joe_fh
Posts: 47
Joined: Aug 2012

Hello. I have been reading the posts here for a few weeks as I try to get a handle on this whole Renal Cell Carcinoma thing.

I was diagnosed August 3rd with a large mass on my left Kidney 10cm, and ever since then it's been a confusing ride of tests, guesses, and assumptions. I have been trying to learn everything I can about this disease. It's not looking pretty from the Internet reads.

It appears that the cancer is restricted to the renal area. The PET Scan came back only showing that left kidney. The Doctor "seemed" to be happy with that scan result, but to be honest, he does not say much.

They determined they need to get that sucker out of there, and I am scheduled for a radical kidney removal tomorrow morning 11:00 AM. As I understand it, the game plan is to do it with laproscopic surgery, unless a condition on the fly mandates open surgery.

Frankly I am terrified, but put on the "no problem face" in front of the kids. Being a single Dad is hard enough without this complication. Not sure if I am more worried for me or for them. Probably both.

Since Dads are not suppose to whine in front of their kids, I guess I am doing my whining on here.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

And we're all crossing our fingers for you too, Joe.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Congrats...and may you remain NED for the next few decades!!!

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

Sounds wonderful Joe. Grab those kids, give them tons of hugs, and start what will undoubtedly be the best holiday ever! Happy for you.

Joe_fh
Posts: 47
Joined: Aug 2012

It's been a while since I posted, albeit I read the forum frequently.

Had my second full follow-up with all the scans and blood work stuff. I am happy to report no new growth, holding steady at NED status. Just cause for optimism.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

and just in time for a very Merry Christmas, it doesn't get any better.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Excellent news Joe.

RichardB63's picture
RichardB63
Posts: 56
Joined: Oct 2012

That is great news, perfect for the Holidays.

Richard

foxhd's picture
foxhd
Posts: 1851
Joined: Oct 2011

Good for you! What's the secret?

Joe_fh
Posts: 47
Joined: Aug 2012

There's a secret? Dumb luck is more probable. As we all know this is - in comparison - early in the curve. It's my understanding we are not considered a 'survivor' until we hit that 5 year mark with NED/Remission. At least that is the extent of the watch plan that oncology outlined in my case.

But for now, today, I am breathing a tad easier.

It's also a bit bittersweet. I read these forums often since my diagnosis and realize the tough hand dealt to many others. It's kinda of humbling to recognize that in the scope of things, I have thus far got off easy.

therapture
Posts: 25
Joined: Dec 2012

Joe, like you, I had a sudden diagnosis which came out of nowhere on 11-27-12, with lots of urine bleeding and sudden pain, in my case my 7.3cm tumor grew into the duct of my right kidney and brought about surgery just 6 days after my diagnosis. Clear Cell RCC stage 2, grade 3, relatively "good" as far as RCC goes, and after hand assisted laporoscopic surgery, everything looks good for NED status. I read about RCC online and literally scared myself to the point I stopped reading for a few days, way too much doom and gloom as you noted. Then I found this site and dove in, looked for better info on reputable sites, and started learning what to ask, how to ask, and my vocabulary got alot deeper. My particular story is mixed deep in this thread (direct link)

http://csn.cancer.org/node/170619#comment-1314645

The 5 year mark seems a long way off, but I guess I consider myself to be "surviving", or one could say "living" with cancer, really a lifelong mission to stay cancer free.

The emotional roller coaster was wild the first week. It helped me to talk to everyone about it and be kind of comical about it, but at some point it's just good to really let the sadness OUT and deal with it, cry, whatever it takes. Then go on fighting and surviving with a great attitude. I was "tough" in front of my kids, we told them the truth the entire time, and they dealt with it better than I expected. I had many an examination of worst case scenarios in my mind late at night, with a few tears spilled here and there, alone in the dark. My wife was strong for me, and we had a few good cries together as well.

In the scheme of things, we are early in the curve for this kind of cancer, and things look good long term. But I'll be here in this forum for years, trying to help others deal with this. It's one of my new hobbies I guess I could say.

Glad to hear from you doing well, and as other's noted, all of the above posted sentiments/feelings/fears come with the price of admission to this club.

Joe_fh
Posts: 47
Joined: Aug 2012

With my latest scans and evaluations in my grubby paws, I am happy to report a continued NED status.

 

- Also, congrats to adman who has also recently reported NED.

cran1's picture
cran1
Posts: 126
Joined: Mar 2013

Congrtas Joe I am happy for you and your kids.

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