Aug 29, 2012 - 2:38 pm
Hello everyone. My father was diagnosed about three months ago after what we thought was a stroke, but then we found out it was a seizure due to the tumor. It is inopperable and about the size of a walnut to start. The explained to us that there isn't any true cause of this type of cancer and that it is extremely aggressive. We went ahead with six weeks, five days a week radiation and temador orally. He has also been taking the trial medication avastin intravenously. It has now been two weeks or so and he is going for his MRI tomorrow to see if it has grown, stayed the same, or shrunk. I have read many places that statistically gbm patients with inopperable tumors live approx. three months after diagnosis which was terrifying but now we are three months in and he is definitely weaker and having other issues but Still going on hikes and trying to live life as normal as possible. I felt that our doctors really haven't been honest or are just avoiding what's to come and we feel a bit left in the dark when we would like to mentally and emotionally prepare ourselves for what could be to come whether the results from the MRI are good or worse. If anyone has any advice or stories or input of any kind it would be greatly appreciated!!!