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Met to pelvis and adrenal gland

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Does any one have experience with thus? Onc wants to see if chemo will rid of them instead of going straight to surgery.

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 474
Joined: May 2012

Thinking of you today, did you have chemo? I did, not feeling real good, but not from chemo, I have runny nose and sore throat from my kids. They just started school and get sick. I usually get sick 2 days after chemo so I probably will feel worse. I don't have any experience with adrenal or peritoneal mets, but hopefully chemo can wipe that crap out. Hope you're feeling good.
Sandy

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Sorry you are not feeling well. Could it be a side from the chemo? I had the chemo. Platelets still low but I was able to get it. Get some rest!

Vicki

steved
Posts: 836
Joined: Apr 2004

This is what I am dealing with- it is for me sitting in muscle near the right lateral wall of the pelvis where the blood vessels and nerves leave to supply the leg. Mine seems controlled by chemo but not treatable with it (ie not curable) hence me looking at surgery. Srugical options for pelvic mets depend on the position of the tumour and all are quite radical- pelvic exenteration (clearing all pelvic organs) is the usual operation- so may not be a worthwhile option if there are other mets.

No knowledge or experience with adrenal mets- are you getting symptoms from it or is it just showing up on a scan?

That is the treatment plan for you and how are you doing generally?

steve

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Onc said they are hot spots and to stay on current chemo plan to see what happens in 3 months and then take the step from there. He said hr has seen people go into remission and focus on chemo instead of surgery right now. I'm on Folori and Avastin. Just had second treatment.

smokeyjoe
Posts: 1428
Joined: Feb 2011

How long would you have to be off chemo. to have surgery?? Just thinking what would happen with the lung nodules while you were off chemo. for a time while waiting for surgery. I'm guessing you'd be back on the folfiri once surgery is done. Hopefully the current chemo you are on rids you of these.

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

I think the lung thing is the issue. ONC doesnt' want me off chemo and is hoping that it would clear out these two new hot spots on the pelvis and adrenal gland. My CEA drop 1 point from one chemo so God-willing he is going to show me some grace and make this work. How are you doing?

smokeyjoe
Posts: 1428
Joined: Feb 2011

I'm on Xeloda, basically going fine, just some feelings of yuckieness, don't know how to describe it accurately, just some yuckieness from time to time. Been doing a lot and really busy so some fatigue but we've been on the go continuously lately. So, it's probably a combo of things. Have onc. appt. on Friday, the usual blood draw stuff....

steved
Posts: 836
Joined: Apr 2004

That is a key issue- you need to be off at least 6 weeks preop and if you were to have major pelvic surgery it is a couple of months post op (sometimes 3-4 if complications occur). Hence if they can hold it with chemo it seems the right way. The pelvic surgery is only usually considered worth it if it offers a chance of cure-so usually done in people without mets elsewhere.

Hope you are coping all right with this- it always feels like one step forward and two back in this journey.I hope you are keeping okay and ensuring you are finding things to enjoy each day.

steve

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Praying for you.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

I don't have experience with that either but hoping only for the best for you.
~Tommycat

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