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lovemycat
Posts: 43
Joined: Aug 2012

Hi Trisha, I got an appointment with Dr. Lea at UT Southwestern on September 17th. Thanks so much for the information you gave me. Helen

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txtrisha55
Posts: 422
Joined: Apr 2011

I really am glad that you could get in to see her. I do not know how she is with others but for me, my family and my best friend, Dr. Lea is the best. She would sit and go over all the questions we had and answer them. She has a great bed side manner too. It helps when you like the drs that treat you. Of course, if it is new and you have not done a second opinon, I didn't, I was lucky that the 1st Dr was good. If you do have to go through treatment (chemo), the staff (chemo nurses) at UT SW are good too. Everyone has a private room with TV, DVD player, they have a snack room and warm blankets. It was not that bad an environment. A co-worker of mine went through Ovarian Cancer as I was finishing up my treatment she just started hers. She went to a different Dr at UT SW but had the same nurses and chemo nurses that I did. She liked the hospital, nurses and chemo nurses. My best friend said that if she ever has to go through this she will be going there.
If you want to read up on her here is the link to her bio
http://www.utsouthwestern.edu/fis/faculty/45963/jayanthi-lea.html

I will be praying for you to get good results from the second opinion and if treatment is suggested that it truns out ok for you. trish

lovemycat
Posts: 43
Joined: Aug 2012

Sound like a very caring Dr and nurses and a comfortable setting also. Thanks for the prayers and for the information. I maybe one of the lucky ones that nothing will ever need to be done but I do want to know my options since 70% myometrium invasion and no lymph nodes checked. I will say a special prayer for you and all the other lovely ladies on this discussion board. Thanks again, Helen

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txtrisha55
Posts: 422
Joined: Apr 2011

I travel some in Texas so what town are you located in or near? 100 miles south of Dallas covers a lot of area. trish

lovemycat
Posts: 43
Joined: Aug 2012

I live in a little town a called Woodway a small suburb of Waco. If ever out this way please come and see me.Helen

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txtrisha55
Posts: 422
Joined: Apr 2011

My family went to an Indian Powwow in a smaller town in that area. We stayed at the new Best Western in Woodway. Very Very Very nice hotel. My grandson loved the giant fishtank in the lobby with all the big colorful fish in it. They also have a indoor swimming pool that they all went swimming in. We did not do anything in Woodway but I do know where it is. trish

lovemycat
Posts: 43
Joined: Aug 2012

Yes we live about five miles south of the Best Western. If you are ever back this way please let me know. My Gyn is sending my information to UT Southwestern to day so it will be there in plenty of time to be studied. There is nothing to do in Woodway except the lake is on one side of the city. But we love living here it is a quite neighborhood. Hope you are doing well. Helen

txtrisha55's picture
txtrisha55
Posts: 422
Joined: Apr 2011

Good LUck with your appointment here. If it is decided that you do take your treatment here in Dallas, let me know. I can come sit with you during treatment if you need someone. I would say we could meet the day you have your appointment but I think that would be to much effort. Meeting new people when you are already having to meet with new Drs. Hopefully you will have someone with you so they can listen and ask question and you are not coming up here by yourself. Let me know how it goes. I did click on to Friend you so we can email through here. trish

lovemycat
Posts: 43
Joined: Aug 2012

I clicked on to friend you also. I didn't know could email through there. That is great.
It is so sweet for you to offer to be with me. My first appoint is at 7:30 in the morning and Ben will drive me as I don't drive very often at night by myself. I am at a lost as to what questions to ask. Do you have any suggestions? I wish it was in the summer before school started as I have a Sister-in-law who teaches RN's and I know she could remember everything that is said but of course college has already started. My first appointment with the oncologists in Waco is next Wednesday. He is not a gyn/oncologists and his partner
is the one that was on the board that said no treatment just to watch. So that is why my family and I want the second opinion. If she says to get treatment we will definitely go with her. Thanks so much for your help and kind offer. Helen

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txtrisha55
Posts: 422
Joined: Apr 2011

Good news is that it is a straight up shot up I-35. Traffic is bad up here in Dallas in the mornings, so give yourself some extra time. Once you hit Dallas you want to follow the signs that point towards Denton, but once you get pass downtown you will take the Inwood exit and turn right. Go pass all the medical buildings and Under Harry Hines Blvd. The next light (across from the Salvation Army Thrift Store) will be the entrance into the Cancer Center. Turn left. It is only valet parking and it cost $5.00. Go to the 2nd floor and sign in at the front desk and go sit in the big waiting room. They have coffee you can fix.
WOW, on the questions. You have had the hysterectomy but no lymph nodes removed for testing. What kind of cancer did they say it was? That should be on the path report. Did you get copies of all the reports yourself? That is one thing that I would make sure of is that you have the reports. It does help when you have them even if you do not understand words you can look them up on the Internet and get an understanding of things. This is something everyone says to be careful off because what is out there is not your case, so read it but do not take it as fact for you. There are so many questions to ask, stage, grade, what does the NCI (National Cancer Institute) state about your type of cancer, treatments, chemo, and/or radiation?
Should you go back in and have lymph nodes removed for testing? Did or Do you need to have a CA125 blood test done? Did they save any tissue to get a tissue assay done to find out which chemo would be best on your cancer? I did not have one done as I did not know about it. What type of chemo would they want to give you, for how long? What about radiation, external and/or internal? Again I did not have any radiation and I was a stage 3 just had chemo.
You can also go through the message boards here and at the top in the search field type in what question to ask or question to ask the doctor and it will pull up different messages. There are a lot of women on this site that have a lot of information. Hope everything goes well and the second opinion is to do nothing and just watch. My thing was if that is all what are they going to watch? What should you look for? You no longer have any female parts so how can you tell if something is wrong? I go for CT scans every 6 months because Dr Lea said there was no signs she could tell me to look for and she wants to see if something is going on inside me, so she ask for the CT scans and I do a CA125 blood test every 3 months.
Whoever you have with you, have them go in the room with you as the consult, they can at least listen to the conversation, two sets of ears hear different things. Also if you a tech savvy and have a smart phone you can set it to record. My daughter recorded my first session with the Dr. At that time they could not answer a lot of our questions because I had not had the surgery yet just a D&C. After the surgery and the pathology report, we went back and they explained treatment options, chemo trials that were going on, gave advise on what she would do based on the path reports. I took her advice and did not do the trial and just took the chemo she advised. So far so good. Good Luck to you, let me know. trish

lovemycat
Posts: 43
Joined: Aug 2012

Thanks for the directions. Yours is a much worse type than mine. Of course I have no stage as no nodes were sampled. Mine is Endometrioid Adenocarcinoma FIGO grade 1b invasion into 70% of myometrial and extends to within 0.6 cm of the serosa and approaches within 1.0 cm of the lower uterine segment. I had no symptoms of any kind was caught on a routine test.
Which I am very glad they did find it. The Endo biopsy said cancer, then D&C said it was 1a
but surgery showed it to be more invasive than first thought. Pathologist suggested radiation and chemo but board couldn't agree. So now I will find out what if anything or tests to do. Don't have a smart phone so will probably just take notes and listen carefully.You have been such a help and given me great information. Thanks, Helen

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Double Whammy
Posts: 2260
Joined: Jun 2010

This is such a wonderful outcome for someone seeking advice on this board! I'm so pleased you got the great recommendation you did. Sometimes good things happen in crappy situations.

Good luck with your appointment. I hope you and Trish get to meet.

Suzanne

lovemycat
Posts: 43
Joined: Aug 2012

Hi Suzanne,
Trish has given me so much help I hope we can meet one day soon. So sweet of her to offer to sit with me if they decide to do some therapy. All of the ladies in this group are so caring and are willing to help each other I'm so glad I found this discussion group.
Helen

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