Aug 24, 2012 - 3:10 am
I have just found this site, and wanted to share my story. Maybe someone has had a similar experience or may have encouraging advice or information.
I am a male age 51. In May 2010 I was diagnosed with Esophageal Cancer stage III ademocarcenoma. I had a j-peg feeding tube implanted in my small intestine, and underwent chemo and radiation. In October 2010 I had most of my esophagus and half my stomach removed, along with some nodes near the site. I was told that the cancer in the tumor was completely killed and that I was cancer free. I was offered more chemo post surgery but the doctors at Fox Chase Cancer Center, who did the surgery, strongly advised against it because I was not in good condition; so I declined. I was unable to eat and was tube fed for nearly a year.
I was finally getting back on my feet and then in March 2012 I had a metastatic lesion in my skull in the back of my head. I underwent a craniectomy, the bone was removed and replaced with a 'plate' of titanium screen and bone putty. I received more radiation, this time to my head. The tumor seems to be completely gone.
Now, in July 2012 I have a recurrence locally, with a tumor in my remnant esophagus. I see a surgeon tomorrow, I suppose to see if it can be re-resected, and am awaiting whatever next step there will be. Needless to say I am devastated, and finding it increasingly difficult to keep my chin up. I welcome any advise, experience, encouragement or general info anyone may be able to offer.
Thank you, Mitch