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Not Home Yet Perforated Bowel and Chemo

westie66's picture
westie66
Posts: 642
Joined: Jun 2010

Hi all: Just released from 3 months in the hospital following an emergency
trip to hospital with a perforated bowel. Was on life support for two
weeks and came to paralyzed from the nose down. Has taken awhile but
I can now walk with a walker and move most of my "bits". I'm sure that
the perforation resulted from the folfirinox chemo treatments I have
had. Anyone know of others that this happened to?
Cheryl

abrub's picture
abrub
Posts: 1528
Joined: Mar 2010

Were you on Avastin? One of the known side effects of Avastin is possibility of bowel perf. I hadn't heard of it as a side effect of folfirinox.

Wishing you a smooth recovery.

Alice

Lovekitties's picture
Lovekitties
Posts: 2900
Joined: Jan 2010

So very glad that your recovery is going so much better.

Praying that it only continues to get better and better.

Hugs,

Marie who loves kitties

Annabelle41415's picture
Annabelle41415
Posts: 4208
Joined: Feb 2009

So sorry that you have been going through all this. Didnt know you were in the hospital and all this was going on. Hoping that your recovery continues to improve and I'm glad that you are making progress. Please keep us informed.

Kim

smokeyjoe
Posts: 1428
Joined: Feb 2011

THERE YOU ARE!!!!! I took some bird photos this weekend and thought of you!!! So HAPPY to see you posting!!!

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

So glad your recovery is coming along. I can't believe how much you have been through. Three months in the hospital I can't imagine. Pray you continue to get better each and every day. Jeff

westie66's picture
westie66
Posts: 642
Joined: Jun 2010

Thanks all - really appreciate your thoughts. I was on oxaliplatin + irenotecan +
5FU infused every 2 weeks. I think perforated bowels are a rare but known
side effect - lucky me! I see the oncologist tomorrow so we'll see where we
go from here, hopefully not more chemo as I don't want to repeat my hospital
sojourn. But things are coming along - can sort of walk without the walker but
am scared to go very far as my balance is still not good. My hands are stiff and
full of neuropathy (another oxi side effect).
Cheryl

smokeyjoe
Posts: 1428
Joined: Feb 2011

Cheryl have you been off all chemo. then for three months? Have they done scans while you were in hospital..or recently??

westie66's picture
westie66
Posts: 642
Joined: Jun 2010

Hi ya: Yes, been off chemo since May 25. I just had a CT scan on Wednesday but don't have results yet.
Cheryl

geotina's picture
geotina
Posts: 2047
Joined: Oct 2009

I was wondering where you were. Ouch, you sure have been through some tough stuff but you are on the road to recovery and that is good. Best wishes for a continued successful recovery. Again, Ouch.

Tina

geotina's picture
geotina
Posts: 2047
Joined: Oct 2009

Opps...a little heavy on the post button - sorry

Tina

janie1
Posts: 753
Joined: Apr 2011

Sorry for the serious complications that took place. Had been thinking about you and wondering......
So glad you are back on the mend. What a roller coaster.....
Stay in touch.

RickMurtagh's picture
RickMurtagh
Posts: 530
Joined: Feb 2010

I had a dx of sacral cancer and fortunately, it turned out to be a chronic infection from a perforated bowel. Boy can that mess you up. Mine was the result of the accumulated effects of chemo and radiation.

Glad to hear things are improving and you are out of the hospital. Just keep moving forward!

peace

Rick

westie66's picture
westie66
Posts: 642
Joined: Jun 2010

Yup, not fun! My oncologist doesn't really believe that the harsh chemo (I was on folfirinox) contributed but I know better - too many of us have ended up with perforated bowels. Luckily we survived! I'm going to read your other post on travelling with a bag!
Cheryl

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