Aug 20, 2012 - 4:52 pm
New to this board. Was diagnosed with acute portal vein thrombosis two years ago, and had complete recvoery with collateral veins growing around the blockage. At that time, they diagnosed me with chronic pancreatitis (hyperechoic stranding) and gallbladder problems. They put me on warfarin to thin my blood, and removed my gallbladder in March of this year. I have not been on the warfarin since december of 2011. The oncologist team has been puzzled, and have done bone marrow biopisies and liver biopsies, but have found nothing. I continue to have low platelet counts, and ongoing diarrhea (or more precisely, steatorrhea - fatty stools that float and are oily). I have lost 25 or more pounds, have abdominal problems after I eat, and do have some back pain. My gastro doctor has shrugged it off, says there is nothing he can do about the diarhhea, and will see me in another year. My concern is that they have been so focused on the liver and bone marrow, that they might be ignoring what appear to be more pancreas problems (and symtpoms consistent with pancreatic cancer). Part of the problem with the veins that have bypassed the portal vein is that they obscure imaging of the pancreas (or so I was told). Should I push for more testing or imaging, and what kind?.