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Recurrennce Question

Glad to be done's picture
Glad to be done
Posts: 443
Joined: Jul 2012
Aug 19, 2012 - 9:42 am

Being new here and NED for just a couple months I have a question. I have read that some of you knew your OC was back. How did you know? What were your recurrence signs? I hope and pray it will not come back but I want to know what I should be watching for since I had absolutely no symptoms of it to begin with. OB just thought I had a ovarian cyst till it kept growing and growing.....

Thannk you for any advice
mom2greatkids's picture
mom2greatkids
Posts: 451
 Joined: Jun 2011
Aug 19, 2012 - 10:47 am
I had no symptoms with my

I had no symptoms with my recurrence this summer. After 9 months of remission, a pet scan showed a lymph node near my collar bone. All this with a normal CA-125. It's different for all of us. I hope your insurance will allow you to have pet scans. My abdominal CT was clear. Hoping you never have to deal with this beast again.

Carla
kikz's picture
kikz
Posts: 1141
 Joined: Jun 2010
Aug 19, 2012 - 2:56 pm
I had no symptoms

but my CA 125 tripled, then doubled again and a petscan showed a tumor near my liver. As with many others, my initial symptoms before diagnosis were minor and yet I was Stage IIIc. I have been told that the CA 125 is a good marker for me so I wouldn't expect to get to the symptomatic stage without my numbers indicating something was going on. Then again with this disease, who knows?

Enjoy today. You cannot control what will happen. I am enjoying each day even though I have recurred. I still feel great and have minimal side effects from the medication I am taking. I consider this a golden time because I do feel good and I don't want to contaminate today with worries about what could happen tomorrow.

I wish you a long, long maybe even forever remission.

Karen

poopergirl14052's picture
poopergirl14052
Posts: 984
 Joined: Nov 2010
Aug 19, 2012 - 7:35 pm
Listen to your body

You will know. Also your ca-125could be a sign. not alway though. Congrats on being NED! .Enjoy and live it up....Val
Felicia_205's picture
Felicia_205
Posts: 79
 Joined: Jun 2012
Aug 21, 2012 - 5:55 pm
I always know almost

I always know almost immediately when I have a reccurence. I can just feel its presence inside of me. If you had know symptoms though then if you have a reccurence they will find it on a ct or on your blood test.