Aug 13, 2012 - 6:09 am
Hi all, finally have full diagnosis. Mass in lower lobe of left lung cancerous, confirmed by thorasic biopsy. Told nodule in uterus had been confirmed as large agressive carcinoma tumour, review of my file and recent gyny history, plus the fact that they had confirmed lung cancer they (oncology, lung & gyny specialists, plus laboratory analysis team confirmed kung is not primary/primitave source) gave us confirmed diagnosis of uterine cancer. Immediate date set for surgery allowing for all possibilities, starting with full internal biopsy, followed by visual assessment, then followed by 'best option' surgery. The normal method of biopsy had been deemed impossible due to location and size of tumour, so this was accepted by us as well as the most immediate and effective way of moving forward and I fully prepared myself for all outcomes, what has to be has to be and I will deal with whatever I wake up to.
We had to then tell all my family/close friends about the imminent surgery and announce the fact that I had been told that I had two "seperate" cancerx. I wrote everything down in b&w for family (leaving out certain not nice details) so that they could read, absorb, go back to it, ask questions etc. I had to give all 3 options for surgery for the 9th August, but, having discussed it with my husband I put in a 4th option which was, nothing is ever 100% cancer until it has been analysed under a microscope and cancer cells have been identified, therefore, it may be a bloody miracle, but they could just do all the investigative part and decide it is not cancerous after all and just close me up and leave all my bits in place !
The hardest part for me so far was this, breaking the news to my family, especially knowing that my nieces & nephews were going to be told, heartbreaking (we have no children so they are all my World from 27 down to 12 :-)) we have already had su h horrendous tragedy & pain & loss in the immediate family since 2010 so I just did not know how everyone was going to cope. Of course, they were all fab, though my mum keeps getting confused about details, my brothers keep her on track. The best words of love and encouragement came from the nephs & nieces, they helped me dig deep to that incredible srength that I know I was born with.
So, imagine my complete and utter ecstasy, shock & jubilation when coming round from surgery I asked one of the team hovering & sorting, "do I have all my bits?" they saide yes, now I know I was under the influence of drugs and was planning on walking back to my room !!! So ok I was doolally, but I remember him saying that. When the head surgeon and his team appeared at the end of my bed at 4pm and announced that they had as much as is possible confirmed that they (there was a second nodule) were NOT CANCEROUS, so they did not do any of the planned options ! Obviously they adivsed that they had biopsied every square inch of my entire reproductive system while they were there and those results would be confirmed next week. My husband & sister-in-law couldnt get out of the room quick enough to make those phonecalls. Call it whatever you like, common sense, one of those things, whatever, to me it is a little miracle being created by those I love up above :-):-):-):-)
So, back to today. It is now one week on, bruises and stitches and internal pain (boy did they move things about in there & not sure there isnt a surface they didnt scrape =-O) but I am doing brilliantly, in excellent form since the day they let me come home, the only discomfort and continued pain is the port they put in and the stitches/pain in the vein in my neck, but I understand this could take another week. We had no idea they were installing a Port (might as well while I am out of it) and had no idea what it was or for, so that caused a little bit of shock, having researched it when I got home, I am thrilled they have done it, I also have very thin, difficult veins, so yes thank you :-)
My rendez vous with the Oncologist is 9.30am Friday (am being given another week to recoup) then wewll be told the treatment plan for my lung.
After that long winded post, this is what I am looking for, before I start chemo, any/all personal experiences, tips, advice, warnings etc would be hugely appreciated. Food wise I am generally well informed, have adapted specifically since being told about the cancer cells, but would still appreciate any advice. I live in SW France so don't have the same access as UK or US to organic foods, vits & supplements, but what I need I find a way to get so tell me all, PLEASE?
Apologies for such a long post, but there has been a big gap since my first post.
Thank you in advance, Edel :-)