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OK ~ PET ~ Now It's Official

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

OK, thanks to all for your thoughts, prayers and concerns.

This afternoon around 2:00PM, I did pick up the results from my PET scan I had yesterday morning.

This was my 4th post Tx PET scan since finishing up treatment in June 2009. So far I can't really say the scanxiety gets much better...well I'm sure my first few were probably the hardest.

Anyways, my "unofficial" results, meaning I read them myself and don't see the MD until next week....

My "unofficial results"...

No evidense of disease, and no changes since the last PET in July 2011.

Best,
John

tuffenuff's picture
tuffenuff
Posts: 277
Joined: May 2012

Excellent!!!

Sam999
Posts: 307
Joined: Mar 2012

Great news John! Congrates! News like this makes us believe all the trouble that we go thru is worth it at the end!

Sam

NoDuck
Posts: 134
Joined: May 2012

Congrats John. You are an inspiration and voice of reason for many of us. Prayers with you for continued NEDs.

Deb

TheOtherDitto
Posts: 57
Joined: Apr 2012

John! Congrats on the NED. Thank you for always being the "voice of reason" for many on here. Your input and insight are greatly appreciated by many!

Laralyn's picture
Laralyn
Posts: 454
Joined: Apr 2012

Congratulations! That's great news!

Tim6003's picture
Tim6003
Posts: 1497
Joined: Nov 2011

I am delighted man...soooo happy for you...

Tim

boardwalkgirl
Posts: 263
Joined: Jun 2012

Great news. That is what we wanted to hear.Congrats!

katenorwood
Posts: 1862
Joined: May 2012

John,
Wonderful news ! Man does that anxiety ever leave us on waiting for results ? Yuck ! More fishing for you John....enjoy ! Warmest wishes sent to you and yours, Katie

Ingrid K's picture
Ingrid K
Posts: 811
Joined: Mar 2011

WOOF WOOF

happy news = happy dance = happy John & Shelley !

KareGiver
Posts: 291
Joined: Apr 2011

Great news, my friend!

CivilMatt's picture
CivilMatt
Posts: 3090
Joined: May 2012

Hey John,

That seals it; we are moving to Tampa and buying a boat (it can’t hurt). I am very happy for you and the extra space in your head after shooing away the scananxiety. Better give Shelley a big hug from all of us for putting up with you and all the fish (you must have a mega freezer). This response is, you know, all unofficial, according to you.

Best,

Matt

Tonsil Dad's picture
Tonsil Dad
Posts: 488
Joined: Dec 2011

Great News John, very glad to hear NED once again.

God bless
Tonsil dad,

Dan.

Tonsil Dad's picture
Tonsil Dad
Posts: 488
Joined: Dec 2011

whoops re-post.

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

That is awesome news, so happy for you! I'm sure the anxiety never really goes away fully however you can rest easy tonight :-)
Congratulations!!!
Billie

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

The unofficial news. Wonderful to hear. I got my scans done Tuesday - will get a phone call sometime. I can't have copies until AFTER doc speaks with me.

osmotar's picture
osmotar
Posts: 956
Joined: Jul 2011

Congrats

VanessaSLO's picture
VanessaSLO
Posts: 280
Joined: Jul 2012

Wow, all the good news and clean PET scans! This is great to hear!

Congratulations and let it stay that way!!!!

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

Great to hear your news, John. The 3-year club is doing well. 10- years...you'll get there.

kcass

Vikeman10
Posts: 62
Joined: Jul 2012

John,
Glad to hear NED hope it continues for a long time.

Randy

hwt's picture
hwt
Posts: 2008
Joined: Jun 2012

I was getting scanxiety myself just waiting for you & Tim to post! Thrilled for both of you.

phrannie51's picture
phrannie51
Posts: 3852
Joined: Mar 2012

Congrats on the 4th NED scan...gives all us newbies hope and faith. You're almost to the imaginary finish line, aren't you...the 5 year NED! Still, the way I see it, the further out you get, the more nerve wracking it might become...is it?

I think I'll dance you around YOUR kitchen....and dream of eating some stuffed flounder while I'm there :).

p

hawk711's picture
hawk711
Posts: 532
Joined: Jan 2010

I am about 10 days behind you in getting another scan. This for me will be 2.5 years. Am looking up to you as my older (but younger) mentor. I'll let you know my results, but in the meantime, enjoy being NED and have yourself a cold one,
Steve

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

Great News; My first PET is still in my future (about 6 weeks in the future).

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

It means a lot to know you all are thinking of me and keeping Shelley and I in your prayers.

P, even though it's my 4th PET, I'm only a little over 3 years post Tx.

The scans tend to be less scary than the first few...but usually it seems that you always have a litlle summin summin bugging you just before...I guess to keep you in check.

Best,
John

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Skiff,

I've been hearing rumors coming outta the Sunshine State lately. The women are ecstatic and the fish are scared!

You da Man! Congrats!!

Greg

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

The report read "there is a lot of fishing for you in the future". Just so glad to see you doing well.

May God continue to bless and keep you in his care
Tim

Jimbo55's picture
Jimbo55
Posts: 572
Joined: Jun 2010

Great news John and you most certainly deserve this. You've helped more people on this site than you realize. Cheers.

Jimbo

Redbanker's picture
Redbanker
Posts: 34
Joined: May 2011

John, this is such wonderful news. Great for you personally,of course, but equally good for this collective as a whole. You've been a beacon of light and a source of calm for so many who have come to this board--that certainly has been the case for me. And the example you give of how to live life, well, that could teach people outside the confines of this group. You've made your mark here.

Keep chummin', Skipper.

Nancy

wild willy's picture
wild willy
Posts: 33
Joined: Jun 2012

congrats john lots of fishing left. i'm 3years 5 months post treatment.did'nt realize it was that far out till now.my next scan is in april.i'v had a sore throat for about 2 wks. that has me a little worried but as you know any thing around your throat causes worry now. i guess its that way from now on. congrats again john. bill

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

You know it....LOL.

Before all of this if I had something going on I usually would just wait it out and it would go away....typical man thing I'm sure.

My wife will make an appointment and go to the MD over nearly everything that comes up.

But then late in 2008 I had a mild irritation in my throat....it never went away, didn't get worse, just wouldn't go away.

Now if something head, throat, chest, etc....hangs around for more than a week or a few days....well you all know. You get nervous, a little scared, and think the worse.

Which does get a bit irritating as my ENT always tells me, the effects of rads will last for several years.

But he also always encourages me to stay pro-active, not re-active.

Best,
John

michdjp's picture
michdjp
Posts: 200
Joined: Sep 2011

Great news...you provide so much to everyone here!
It gives hope to all
Thank you for everything including sharing your good news
Stay well
Michelle

D Lewis's picture
D Lewis
Posts: 1547
Joined: Jan 2010

We love NED!

Pro-active Deb

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

that is better news than any fish caught or live well full. congrats.

btw the way, my statement is official

congrats, now go out and do the dance, put it on video and share for all us to see.

PTL
john

Crazymom's picture
Crazymom
Posts: 318
Joined: Nov 2011

Congratulations! I am happy for you!

Ann

patricke's picture
patricke
Posts: 489
Joined: Aug 2006

You hooked into some Great News John, no need to flounder, nothing fishey there, what a great report catch! Just keep those NEDS coming!

PATRICK

ditto1
Posts: 634
Joined: Mar 2012

on your good news. I will Ditto what so many have said, Skiffin you have been so helpful to so many, and I think I can speak for others that when we post we often look forward to your words of wisdom, or musical lyrics, or fish pictures or something that just works for the moment. You have the wisdom to hold our hands when necessary and the strength to tell us to get up and press on if thats what we need to hear. So may many fish jump in your boat and as P51 says will look forward to 5 year NED. But for today enjoy.....

pascotty's picture
pascotty
Posts: 166
Joined: Aug 2010

Best news. So glad to hear that. Another milestone xxxxx

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

OK, as of this afternoon....now it's official.

I saw my MD, all is good....

Even my TSH levels have come back within normal ranges. That's two in a row for TSH....was trending at nearly 7.0, back to just under 5.0 the last two CBC labs...

Thanks all,
~John

hwt's picture
hwt
Posts: 2008
Joined: Jun 2012

Is that something we need to know or ask about? I have follow-up appt, with ONC this week and was just writing down my questions.

Irishgypsie's picture
Irishgypsie
Posts: 331
Joined: May 2010

Good News Brother!! :)

patricke's picture
patricke
Posts: 489
Joined: Aug 2006

That's great news that your doc comfirms what you read; did you tell your doc, that yes, you (the doc) are right, you read the report correctly, I'm glad that you agree with me. It is time for the happy dance indeed!! You can skiff out on the bay smilin wide while you do some hookin for cookin.

PATRICK

D Lewis's picture
D Lewis
Posts: 1547
Joined: Jan 2010

It's good to be official.

Deb

phrannie51's picture
phrannie51
Posts: 3852
Joined: Mar 2012

I'll accept your unofficial report, because I have a feeling you read this medical stuff just fine.

p

TheOtherDitto
Posts: 57
Joined: Apr 2012

Congrats and wishes for many, many more!!!

sonyk728's picture
sonyk728
Posts: 108
Joined: Jun 2011

You're an inspiration!

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

You dear one, ARE the inspiration...

~John

sonyk728's picture
sonyk728
Posts: 108
Joined: Jun 2011

You're an inspiration!

CivilMatt's picture
CivilMatt
Posts: 3090
Joined: May 2012

Hi John,

Everything I said before but now it is official.

Did they zap your Thyroid or did this come up post treatments?

I sure am happy for you and Shelley.

Best,

Matt

tommyodavey's picture
tommyodavey
Posts: 382
Joined: Nov 2011

Great news for you, not so great news for fish. ;>)

Always nice to hear the NED news report.

Tom

Grandmax4's picture
Grandmax4
Posts: 597
Joined: Dec 2011

:) :) :)

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