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Vulvar Cancer: squamous cell carcinoma
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Aug 07, 2012 - 4:04 pm
Hi Have not found too many people I can talk to about it. Dx in March 2012 Stage 11 Squamous Cell Carcinoma of vulva. Had chemo ( 2 cycles of 5 days continuous, 5FU, Cisplatinum) with 25 radiation treatments, plus 3 brachytherapies. Finished mid June and am still healing and recovering. It was very brutal and I ended up in the hospital for a week for pain control. Feeling better now but still having bathroom control issues post radiation to the rectal area. Also having a lot of hip stiffness. Does anyone out there have this cancer and can I share with you? Thanks so much. Stay Well!! Feeling alone in Phoenix |
Joined: Jan 2013
Hello! I am new to this site and found your post after searching for my type of cancer. I totally understand how alone you feel. I feel like people look at me crazy when I say Vulvar Cancer. I am 36 and was diagnosed in May 2011 and since have had a full vulvectomy, 3 partials and 10 laser surgeries. I was hoping the laser I had last Friday would finally be my last but the doctor called this week and said it is back. So next week I am having a full hysterectomy followed by 6 weeks of radiation. To say I am overwhelmed would be an understatement.
Joined: Feb 2013
I had quamous cell carcenoma of the Bartholian gland, sometimes called vulvar cancer. I had 4 rounds of chemo and 31 radiation sessions because of lymph node involment and pleased to say that other than painful bowel movements three weeks after my last treatment I have no other symptoms left. A month ago burnt flesh was falling off my labia in chunks, today it's all pretty and pink (lol) but when I hear of people having long term effects I worry about how much longer I will be in pain every time I have a bowel movement.
Joined: Mar 2013
I recently underwent a radical vulvectomy and a total clitoridectomy as well, for squamous cell carcinoma. I have spent a lot of time researching the outcome for this type of procedure, but there is nothing written about this procedure except discussion of "third world mutilation." My husband and I feel as though we have somehow slipped through the cracks; no one even wants to talk to us about this issue.Removal of the clitoris seems to be something no one wants to discuss, but here we are trying to put our lives back together in some fashion. Does anyone know anything about resources for this type of procedure that we have not found?