Hello to my dear family,
The Pet CT scan taken July 30 is still negative for activity. I am still in remission.
To those who are not familiar with my DX: In September 2009 I was rushed to the
hospital with terrible pain. After a CT scan, it was noted my small bowel
perforated. I was rushed into surgery. I was in ICU for one week, then 2 more weeks
in the hospital. Total 3 weeks. Please note, I was feeling great with no symtoms
what so ever. Nadda. Surgery resected the small bowel.
A biopsy was taken. The perforation was caused by NHL. My dx was Marginal, stage 1,
low grade, indolent B cell NHL. Sub type: Extranodal marginal zone B Cell NHL.
I was treated only with Rituxan once weekly for 4 weeks in Dec 2009.
I try and understand all I have been reading over the years since being DX. Once
again I went over my concerns with my oncologist yesterday. Indolent, Low grade
NHL can appear again or transform. She stated, if it appeaars again, it maight
be 5 years or 10 years. Or never return.
I will be seeing her in 6 months, Feb 2013. I suppose she will order extensive
blood work then. She doubts there will be another Pet CT scan for awhile. For me,
this frightens me. I know the radiation is high, but. Do I trust the extensive
blood work? I know a Pet CT scan shows the true story. Also, how I feel day to day.
Some of you are wondering. Be happy with the results and not worry about later on.
I can't say I am worrying about tomorrow. I am thrilled with the results. I just
can't get it out of my head what happened in Sept 2009. There was no warning.
Maybe some of you feel as I do at times. I just had to share what is going on
in my head. There is a thought that comes to mind. Once being DX with cancer,
your life is never the same. Always waiting for the other shoe to drop.
Love all of you my family. I will always be there for everyone. Love, hugs. Maggie