Aug 07, 2012 - 7:16 am
I am just curious how others handle this: Talking to your children about the specific risk of cancer. As I have posted before, on April 30, a CT Scan checking for the cause of my abdominal pain (cause was probably gas) found a 6 cm mass on my right kidney. The kidney and tumor were removed 6 weeks later, and it was a Stage 1B grade 4 Clear Cell. From a cancer perspective, I seem to be cured.
Because my father, grandfather, and great grandmother, and great aunt (grandfathers sister) all had kidney cancer, I assume there is a genetic component. I went to a genetic counselor, and she ran some tests for a few genetic mutations that correlate to Kidney cancer (Von Hippel and one other one). I am awaiting the results. Because the breast cancer mutation runs in the family (my sister has the BRCA1 mutation, but had surgery to minimize the risk. BRCA1 seems to be unrelated to Kidney Cancer (and my family history shows that BRCA1 probably came through my father from his mother, the Kidney cancer through his father).
Here is my question. Clearly, my 10 year old daughter will require genetic testing at the appropriate age. But, regardless of the results, she will need enhanced screening. My biggest concern is if something happens to me, I am not sure my wife will talk to my daughter about this -- she tends to forget important things. How do others handle this issue?