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Tongue Cancer - Stage 1

dalapathys
Posts: 20
Joined: Jul 2012

My friend is having stage 1 tongue cancer diagnosed with “Well differentiated squamous cell carcinoma” 2 weeks before and doctor advised for immediate surgery. Dr says that this can be 100% cured. Anybody done surgery during stage 1. We are all motivating my friend every day. But he is still not convinced and always in depressed. . I need your kind comments on surgery, life style after surgery, life threat, etc.

Regards
Dalapathy

longtermsurvivor's picture
longtermsurvivor
Posts: 1780
Joined: Mar 2010

was diagnosed this early. Obviously this confers a significant survival advantage. The majority of those who post here were more advanced disease at the time of discovery. Your friend is likely curable with surgery alone.

Pat

dalapathys
Posts: 20
Joined: Jul 2012

Thanks Pat. Really appreciate your reply.

CivilMatt's picture
CivilMatt
Posts: 2900
Joined: May 2012

Hi dalapathys,

I had a spot on BOT (base of tongue), left side removed along with a lymph node on left of neck and I never did notice the soreness from the tongue surgery and the neck wasn’t too bad. Even if I did, they’d give you access to a whole room filled with pain medications. At Stage I, surgery only, you are being given a gift; they don’t catch cancer much sooner than that. Right now it is a bump in the road, tomorrow it could be worse.

Best,

Matt

Stage IVa, radiation and chemo

dalapathys
Posts: 20
Joined: Jul 2012

Thanks a lot Matt. Your reply is really great and very encourage . I am going to print out this and hand over to my friend.

Matt, can you please provide little more details before surgery and after surgery.

CivilMatt's picture
CivilMatt
Posts: 2900
Joined: May 2012

dalapathys,,

There is not a lot to say:
Before surgery - felt a lump while shaving (11-11-11), went to GP, wait a week to see if swelling goes down, it did not, went to ENT, had throat scoped and fine needle biopsy, found spot on tongue, scheduled surgery to see how bad, ENT decided he could surgically remove all visible cancer and did (12-15-11). ENT suggested I progress to next phase and have consult for radiation and chemotherapy.

After surgery – surgery healed fast and scar barley visible. Neck still numb a little around jaw. Planning and preparing for rad and chemo treatment next.

Best,

Matt

dalapathys
Posts: 20
Joined: Jul 2012

Thanks Matt. I am from India and hence there is delay in my response. Time diff is approximately 12 hrs. my night is your day.

I communicated this to my friend and slolwy coming out of depression. Dr fixed surgery date on Sep 3 and god is there to make it successful. I'll be in touch with you regularly. my personal email id is dalapathys@hotmail.com

katenorwood
Posts: 1817
Joined: May 2012

Hello !
I had a different dx. But regardless the stage (which by the way stage one very good for best outcome !) I feel get the alien out ! I hope your friend decides to be proactive and does the surgery. A cancer dx is very devastating...frightening and depressing. The list goes on and on in the beginning. Surgery is never fun...but saying this if it improves your quality of life and you can move on past it....yah ! You sound like a wonderful friend, please continue standing by him. Warmest regards sent out to both of you ! Katie

ratface's picture
ratface
Posts: 1234
Joined: Aug 2009

and your friend should take the diagnosis as a life threating situation if not dealt with immediately. 100% Curable only if acted upon during this early stage. Indeed this person has been given a great opportunity to sidestep a potential tragedy. Wait till this thread runs it's course and then print it and hand it to him/her. Get treated, the sooner the better.

dalapathys
Posts: 20
Joined: Jul 2012

Thanks a ton. Everyone is encouraging and really great. - Dalapathy

dalapathys
Posts: 20
Joined: Jul 2012

Kate,

Thanks for your reply. I am going to print out all replies and handover to my friend. - Dalapathy

hwt's picture
hwt
Posts: 1880
Joined: Jun 2012

Your friend is very lucky to have gotten his diagnosis at stage 1. Also, very lucky to have a friend looking out for him like yourself! The swifter he acts I assume the less likely he would be to need radiation or chemo...hope so!

RubyRuby
Posts: 17
Joined: Aug 2012

Hi Dalaphathy

I can fully related to your friend's feeling as I has been diagnosed with 2nd stage cancer on the tongue in mid June.

My ENT Specialist acted very quickly and I have had a major surgery on the 2 July. The surgery involved a partial glossectomy (clearance of the cancerous part of tongue), a neck dissection (removed 34 lymph nodes), a tracheotomy, re-construction of tongue with radiant forearm flap, plus a skin graft. The surgery was 10 hrs long, and I was hospitalized for 11 days.

With God blessed, the final pathology report came back with negative result. So now I am all clear. No radio nor chemo therapy needed and the surgeon advised that the cancer was in fact in a very early stage. (stage 1).

In regards to the recovery process, It was very tough at first but got better after a week. One month on, I can now talk very well and has just started to eat solid. Surprisingly I have experienced very little pain the whole time considered that there were so much involved. Thanks to the morden medical technology. I came home from the hospital with a packet of paracetamol tablets only. No doubt that there are some discomforts from various wounds, but I found that they are manageable without needing to take any pain killers.

So, please tell your friends do not panic, the medicos will do all the hard work. It is still a month before his surgery, just relax, keep the immune system as strong as possible, eat well and stay well. It will certainly contribute to a better recovery path.

I personally have acupuncture treatments weekly pre-operation and has just started the acupuncture treatments again last week. Perhaps your friend can give it a go, if he likes.

Dalaphathy, I sincerely hope that by sharing my own story could help your friend. It is certainly doable. Just be strong, be confident. In a couple of months, it will all behind him.

Kind regards
Ruby

dalapathys
Posts: 20
Joined: Jul 2012

Thanks a ton Ruby for detailed explanation. This would really boost mental power. Acupuncture is prescribed by doctor or taking on your own. Where did you underwent surgery?

RubyRuby
Posts: 17
Joined: Aug 2012

I have been seeing my acupuncturist 2 months before I was diagnosed. It was my own choice because I felt that my boby wasn't quite right but was not sick enough to see a doctor. I found it very beneficial after 6 treatments as it helped bringing my body back to a balance.

Once I got diagnosed with cancer, my acupunctuerist concentrated on build up my immune system in order to prepare my body for the operation.

After the operation, the ENT surgeons, the plastic surgeons and the nurses were extremely happy with my recovery progess. In fact, I feel "well" the whole time. I told my friends that I am not "sick". The discomforts that I am experienceing is only "inconveniences". And they will go away eventually.

Be honest to you, in the beginning, I thought this will be a life time suffering, but I was surprised how quickly things changed. Just last week I told my brother I might have to have puréed diet for another 2 months, and suddenly I realised that I can eat solid food (as long as they are cut in small dice size) 2 days ago.. I was told that my speech is clearer everyday. And I am now only 5 weeks post-op.

Your friend is very lucky to have great friend, like you, to support him. It's the most important part of the cancer journey. I am too very lycky to have my family and lots of great friends' support all the way. I don't think I could do it without them. Keep up the good work.

Please tell your friend to KEEP POSITIVE. However it would be at his best interest to move the surgery forward, as early as possible.. Like any cancer at any stage, It's extremely important to act as quickly as possible.

Good luck!

NitaNita's picture
NitaNita
Posts: 56
Joined: May 2012

I had a sore on the left side of my tongue that wouldn't go away. I went to a different Dr that said he thought it was cancer. He did a biopsy and it came back SCC. I had a pet scan done and it came back clear everywhere but the left side of the tongue. Dr said surgery and wanted to have 20 to 25 lymph nodes removed from the left side to make sure it hadnt spread. I had the surgery on June 19th. I was really scared but honestly it wasn't bad at all. The cancer had got in to the nerves under my tongue so he had to remove a little more then he thought but there was no cancer in the lymph nodes! I had a little slur for the first few weeks till the swelling went down. I ate fine after surgery, my neck has healed great and I am not even two months post opp! Hope this helps. Tell your friend he/she is going to be okay. It's a scary thought however I feel better now then I have in months!!

dalapathys
Posts: 20
Joined: Jul 2012

Nita,

Thanks for your reply. Did you check after surgery? Did Dr remove 100% of the cancer cells?

Regards
Dalapathy

RubyRuby
Posts: 17
Joined: Aug 2012

Hi Dalapathy

Do you know exactly what involve in your friend's surgery? What's the size of the tumor? Which part of the tongue the tumor presented,

As every case is different, it's extremely important for your friend get as much info about the operation from the surgeon as possible, any side effect may occur etc. Does he need a neck dissection?

I am experiencing a side effect after the selective neck dissection: I still can not lift my head up. When I try to lift my head, ther is a pull on the neck restrict it. The most i can do is looking straight. It was worst in the beginning, but after massaged the areas and neck exercise daily, my neck is flexible enough to the point that I can drive again.

So do ask your surgeon any questions you and your friend may have. This will certainly help to calm the nerves down if you know exactly what need to be done and what to expect.

Ruby

dalapathys
Posts: 20
Joined: Jul 2012

Ruby,

Dr advivised to do neck dissection as well to avoid future complications. Size of tumar is 3/4 th inch and upper side is with tumor. Hospital fixed surgery on Sep 3 and she is not able to eat as its burning. So she is applying some gel and then taking food. The point is she is very emotional and not getting enough sleep even though we are all giving sound enough support

Regards
Dalapathy

fisrpotpe's picture
fisrpotpe
Posts: 1328
Joined: Aug 2010

the sooner the better.

i would share, if wait too long like many do when they get sore in mouth to have it looked at by doctor it can and most likely will advance. waiting could lead to what many of us have been thru.... radiation and chemo. have surgery as fast as he can could lead to only surgery and keep an eye on it.

prayers for wisdom for your friend.

john

patricke's picture
patricke
Posts: 463
Joined: Aug 2006

Hey dalapathys, exactly what is your friend not convinced about? It sounds more like a denial of reality, an ostritch with his head in the sand, as it were. He is very fortunate in one respect, in that, the cancer has been caught at stage one, and is well defined. Based on what you are saying, it's time for your friend to get his show on the road, and roll into the surgery suite to take care of the beast while it is still stage 1. Life style for him after surgery should be great with minimal adjusting to be made. Of course he would want to chat with his doc to get an accurate idea of what the surgery will entail, and what to expect life stylewise after the beast is put down. Remind your friend, that in any adverse situation or event, that the effect of the situation or event depends 90% on one's attitude, more than what one has gone through, or experienced. So, tell him that it's time to buck up, put on his A Game Positive Attitude, and kick some cancer butt!

PATRICK

NitaNita's picture
NitaNita
Posts: 56
Joined: May 2012

I went to my 6 wk check up and they said everything looks better then he thought it would. He believes he has got it all and it looks like he did. I have a pet scan in December but I feel great and believe I am okay now due to getting it all taken care of early and in stage 1! I really reccomend your friend doing the same.

NitaNita's picture
NitaNita
Posts: 56
Joined: May 2012

I went to my 6 wk check up and they said everything looks better then he thought it would. He believes he has got it all and it looks like he did. I have a pet scan in December but I feel great and believe I am okay now due to getting it all taken care of early and in stage 1! I really reccomend your friend doing the same.

dalapathys
Posts: 20
Joined: Jul 2012

Thanks Nita. Good news. Is it cured 100% after surgery?

dalapathys
Posts: 20
Joined: Jul 2012

Thanks Patrick. She is so emotional on the word "CANCER". Though she is in stage-1, worried about life threat

Regards
Dalapathy

NitaNita's picture
NitaNita
Posts: 56
Joined: May 2012

If it is not in the nodes then they say it's a 95% chance it wont come back. I will have my pet scans done every year and I have my 6 wk check ups to make sure if it does it is caught early. We all know its never a guarentee that it wont come back. If its caught early I really think she will be okay but she needs to have it taken care of so it doesnt spread! Good luck!

dalapathys
Posts: 20
Joined: Jul 2012

Thanks Nita

Grandmax4's picture
Grandmax4
Posts: 583
Joined: Dec 2011

to your friend, I chose surgery for cancer of the epiglottis, been 9 months and I've never looked back~~feeling great!

NitaNita, so good to read you're doing so well, much health and happiness to you

dalapathys
Posts: 20
Joined: Jul 2012

Thansk all for your great support. Surgery successfully done for my friend on Sep 3, 2012. Surgery duration was nearly 12 hrs. Dr removed 1/3 rd of the affected tongue and replaced with left hand muscle. to fill the cavity in the hand, hip muscles used. Finally neck was opened in L shape to remove lumps formed there. Dr says operation was successful and they will do one more scan after 6 weeks to find out if there is any cancer cells are still there. I'll keep you posted.

RubyRuby
Posts: 17
Joined: Aug 2012

Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

Please let your friend know that only a few more weeks, she will be back to herself again.

Ruby

RubyRuby
Posts: 17
Joined: Aug 2012

Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

Please let your friend know that only a few more weeks, she will be back to herself again.

Ruby

RubyRuby
Posts: 17
Joined: Aug 2012

Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

Please let your friend know that only a few more weeks, she will be back to herself again.

Ruby

RubyRuby
Posts: 17
Joined: Aug 2012

Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

Please let your friend know that only a few more weeks, she will be back to herself again.

Ruby

RubyRuby
Posts: 17
Joined: Aug 2012

Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

Please let your friend know that only a few more weeks, she will be back to herself again.

Ruby

RubyRuby
Posts: 17
Joined: Aug 2012

Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

Please let your friend know that only a few more weeks, she will be back to herself again.

Ruby

RubyRuby
Posts: 17
Joined: Aug 2012

Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

Please let your friend know that only a few more weeks, she will be back to herself again.

Ruby

RubyRuby
Posts: 17
Joined: Aug 2012

Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

Please let your friend know that only a few more weeks, she will be back to herself again.

Ruby

RubyRuby
Posts: 17
Joined: Aug 2012

Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

Please let your friend know that only a few more weeks, she will be back to herself again.

Ruby

dalapathys
Posts: 20
Joined: Jul 2012

Thanks Ruby. She is in ICU now and would be transferred to room tomorow or day after tomorrow. I'll keep in touch.

RubyRuby
Posts: 17
Joined: Aug 2012

Gongratulations to your friend. So glad to hear the surgery was successful. You and your friend have been on my mind since the first day I joined CSN. I come back every day quietly to check on your friend's progress and to read all the inspiration posts from the others. I have learnt so much from everyone here in the last month. People here are all wonderful so please do come back to visit, you will, like me, find answers to a lot of your friends questions and learnt tips to ease the side effects.

Your friend is now on her road to recovery. The first few days would be tough, please tell her stay positive because she will see the improvements very soon.

Your friend had the exact same procedures done as i had. My Trachy was out on the fifth day and talked straight away. First sip of water on the eighth day after the PEG out. Boy, it was sooooooo good! I had puréed diet for about 4 weeks. Lost 15 lbs all up which I would not be complaining about.

I am now 2 months pro-ops, have been back to full time work for 3 weeks and is very happy and well. my energy level is good, no restriction on eating anymore, except i have lost 2 molars during the surgery so I eat much slow now. Will look into getting the dental work done once the foreign tongue is completely settled. I do routine exercise and self massage (3-4 times a day) on the neck to reduce the swelling and to loosen the stiffness (and hardness) of the neck. Other than these couple of little things , my life is completely back to normal.

Please let your friend know that only a few more weeks, she will be back to herself again.

Ruby

RubyRuby
Posts: 17
Joined: Aug 2012

Sorry for posting my message so many times. my webpage on phone got stuck and I hit "post" too many times and hope it will go. I will learn better from now on :)

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

Isn't technology and modern medicine awesome...

Thoughts and Prayers Dalapathy
John

jreyes
Posts: 1
Joined: Oct 2012

Hi Dalapathy,

I was diagnosed with Stage 1 squamous cell carcinoma on my tongue. I had a tumor the size of a nickel towards the middle rear on the right side of my tongue. I also had a white "milky cloud" cancerous growth on the same side further to the front. My ENT referred my to a few University hospitals in norther California where we live. I research the three major cancer centers and chose Stanford because of Dr. John Sunwoo. I am now 3 months past my surgery in July 2012. They had a pathologist in the OR working with my surgeon Dr. Sunwoo biopsying and helping him get EVERYTHING eradicated from my tongue. They also did a neck dissection because they found enlarged lymph-nodes during my PET scan. They removed all the lymph-nodes on my right side and biopsied everything in my neck region. I am happy to report that they removed all of the cancer cells in my tongue and my lymph-nodes and neck region biopsies all came back negative! The team at Stanford has a tumor board they call it. They met and discussed all of my results and determined that I will not need radiation or chemo. I was very luck, but I also credit the staff at Stanford for their team work and aggressive educated approach.

Post surgery I woke up and was highly determined to not lay down and take this. I started walking around the unit the next day. I truly believe a key to you healing is your attitude. It is very easy to get down, but you have to stay positive!

bmansell16
Posts: 2
Joined: Feb 2013

JReyes,

 

Congrats on the outcome. I am one month out and my story is very similar to yours. My tumor was Stage 1/2 and I had the big juicy lymph nodes as well. Because of my insurance, I couldn't do Stanford or UCSF, but the Oakland Kaiser with Dr. G is considered one of the finest for this type of cancer. My Lymph Nodes were clear as well. I was back to work two weeks after surgery and I am 100% back to normal. No radiation, no chemo...we are the lucky ones.

Dalapathy,

I hope everything turned out well. From the date of this, it looks like about the same time I was diagnosed, so I hope your friend rushed in and got the surgery. It wasn't so bad. A little scary, but I have had a few surgeries before and I think that makes it easier.

 

longtermsurvivor's picture
longtermsurvivor
Posts: 1780
Joined: Mar 2010

Welcome to the board. The poster you responded to only posted once, and that was back in October of last year.  Sometimes these older threads get dragged back to the top, but they don't get as much attention as the newer threads do.  I have no  idea what happened to the poster you responded to.  Hopefully they continue to do well and decided they didn't need this forum.  Anyway, welcome to the board.  Hope you continue to post.

 

Pat

bmansell16
Posts: 2
Joined: Feb 2013

Thanks, I noticed all of that after I posted...Embarassed

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