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I am now a cancer patient.

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

On 8/3/2012 I was told by my Gyn that my biopsy showed that I had cancer. My first reaction was to cry. My doc was wonderful,he held my hand and tried to console me. He told me to focus and please listen to what he was going to say. He told me reports indicate grade 1 endometrian cancer and he thought stage 1 but would need furter testing to prove that.I went for blood test and chest xray that same day and have a cat scan scheduled for tomorrow. I am so scared it may be a higher stage because luck has never been on my side.
My doc in just a Gyn and I know I have to go to a Gyn/Onc. I have an HMO so I must stay within the network. I live in Northeast Pa about 70 miles from Lehigh Valley Womens Cancer Center and they have a few gyn/Onc's on staff and that is part of the HMO network. I am calling tomorrow for an appointment and hopefully can get one soon.
I am 62 years old and overweight. I do know now that the weight is a contributing factor in uterine cancer. I will try not to beat myself up about that.
I know I will have to at least have a hysterectomy and that does not scare me,even though I have never had surgery. It is the cancer and possible spread of it that does scare me
I will be going to my Gyn on Friday 8/10 for results of the tests and I am so scared.
I have been reading posts on this message board and must say there are so many brave women out there. God Bless all of you.

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

I remember when I got my diagnosis. Scared me so much my teeth chattered. Had to really take hold of myself and decide that I was going to fight this thing and win. One of the things that gave me comfort in the beginning is that we are living in an age where cancer is treatable. There is a whole world of medicine out there that can address your cancer and give you many more years. Being a cancer patient in this day is better than it was years ago. It is not a death sentence. You have options and HOPE!!!
Keep us posted on what is going on with you. I am sure some of the other ladies will join in. You are not alone.

nempark
Posts: 579
Joined: Apr 2010

So Sorry about your dx. Norma said almost everything that anyone else would tell you. Talk about fear, yes we all went through that phase. Off course you will have a Hysterectomy and be sure to tell your Doc to remove the Omentum, some of them neglect to do so. I had stage 1 and had a full procedure and believe me my dear, it was a piece of cake. I know that I should not tell you not to worry and not to be scared, because it is only normal. Wait and see what the results are and then go from there. I am also 62 and was dx in 2009. Did the works chemo and every thing. Please do not talk about luck not being on your side. (what is luck?)This is part of life and we have to be strong and ask God to help us to endure this journey you are about to embark upon. Believe me, as time goes by you will be able to accept and move on. Boy, all of us on this board know exactly how you feel. But I remember one lady told me that "I should not go there before I get there" Please take note of this and try not to add more to your plate than you have to. We will be holding your hand during this journey. You need to take someone with you because you are not going to hear everything the Doc says take a pen and a pad. I wish you all the best and hope for a good dx. j

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

Thank you so much for your support, it really means so much to me. It brings tears to my eyes. No one knows what you are going thru unless they experience it themselves. I am so glad I found this site.

April
Posts: 34
Joined: Jul 2012

Definitely don't beat yourself up over the weight or any other issue that you think might have contributed to this cancer. From what I've heard, being overweight is just part of a guideline that can tip doctors off to a certain disease.

After bleeding practically nonstop for six months, I went to a gynecologist I found in the phone book. He conducted an exam, ordered a transvaginal ultrasound that didn't go so well, and then an external ultrasound was performed. I really don't know the results, but figured if something was wrong, he would call me. He thought it was probably peri menopause. Finally, approx 11 months later, my endocrinologist referred me to a different gynecologist. She also said it was probably peri menopause but wanted to do a d and c and biopsy. She said she didn't expect to find anything. I almost backed out, thinking it was overkill and that I would go through pain needlessly. Then came the diagnosis of endometrial adenocarcinoma. I kicked myself all over the place for not being persistent in the first place. I've always been concerned about seeming like a hypochondriac so I failed to push through things. That didn't change where I was though. So you're right - the past isn't worth beating yourself up over. Save your energy to beat the cancer. It, after all, is the enemy.

Kaleena's picture
Kaleena
Posts: 996
Joined: Nov 2009

HI Chrismc:

Sorry you have to go through the testing, etc. It is a scary thing when you hear the "word". However, do not look up stuff on the internet. It is full of so many outdating material and stats.

If you need to have a hysterectomy, please be aware that they may remove besides your ovaries, tubes and uteris, your omentum and appendix, plus lymph nodes to give you a staging. They will probably due a blood test called a CA125. Normal range is 36 or below but be aware that this is not an indicator for everyone. For example, myself, it was not an indicator.

My diagnosis in 2005 (when I was 45) was Grade 2, Stage iii/a endometrial adenocarcinoma. I was treated with chemo and brachytherapy. I am now 52 years old.

My best to you on your upcoming appointments and tests.

(((Hugs)))

Kathy

P.S. I live in PA too!

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

I am trying to keep busy so my mind is on something else besides C. I am retired so I don't have to deal with work. I am going to makeover my bedroom so I will have a nice place for my recovery after surgery.
Called the Gyn/Onc today for an appointment but they won't make one for me until my records are faxed to the office. Since all my tests are not yet at the local gyn's office, I thought I would wait until I see him on Friday when he will discuss staging and then ask for the records to be transferred . When I was on the phone with Gyn/Onc office they would not even give me an idea of how long you have to wait for an appt. They said they determine that when they recieve the records. There are 3 Gyn/Oncs in the practice and they asked which one I wanted. I really don't know which would be the best so I told them probably the one I could see the quickest. I hope I am not making any mistakes in my plannning of this. I was just wondering how long did any of you girls have to wait for a gyn/Onc appt?
I would also like to thank everyone for your replies. I know feel like I am not alone in this.

txtrisha55's picture
txtrisha55
Posts: 422
Joined: Apr 2011

Sorry you have to join this group but there are a lot of helpful ladies on this site. I am in Dallas Tx and my Gyn is in the University of Texas Southwestern Hospital group. After I had a D&C when said there were cancer cells, my Gyn called and set up the appt with the Gyn/Onc in network for me. I got the results on Friday, April 1 and had an appointment on Mon April 4. Surgery was set for Friday April 8. I think because I was in the same hospital group they had access to my records faster.

You are not alone in this fight, we have all been there and know what you are going through. Try to remain positive and do not spend a lot of time thinking and worrying about What If. Your weight might be a contributor to the cancer but I found that there are a lot of women on this site that were in the best of shape and they still got Uterine cancer. It is just bad luck.

Do you have someone that can go with you to the gyn/onc when you go? Take an extra set of ears when you go, someone to take notes, ask other questions, etc. It helps.

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

I am glad you came to this board.
I had a biopsy at the end of November 2010 and surgery December 23, 2010.
I waited so long because there was not an operating room available at the hospital, but my gyn/onco wanted to do surgery immediately.
I think that once the gyn/onco receives your files, he/she will push for the surgery.

Even though your head is on something else now, start building up your own file.
Every time you have a test done, have the Dr. or hospital send you a copy, including CDs (CT, CAT, PET scans).
Get records of the surgery, blood work, and biopsy.
I have been scanning everything, so my file is in my computer.
It is very convenient, in case you switch insurance, doctor, or just simply want a second opinion, and of course it will keep you busy!
Also, before and after going to appointments, write down your questions.

Feel free to ask any questions you might have.
We are here to support you!
((((HUGS))))

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

Thank you so much for the suggestions Hola.
I am really a mess today anxiety wise because I have that appt with my Gyn on Friday to get results of cat scan and chest xray. Can't help but think this may be worse than he thought. I don't know if I am strong enough for this. I am trying to keep my mind busy but it is not working. Just got a reminder call of my Fri appt and felt sick after hearing the message. Will I ever be able to relax again in my life.

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

Your feelings right now are normal.
It is the unknown what makes us anxious.
I am not going to advice you to relax, because I know for fact it won't work.
However, keep in mind that it is what it is. Worrying about it will not change the diagnosis, but it could affect your immune system.
Right now, you need to eat well and exercise if you can.

You will be surprise to discover how strong you are.
This is a very hard road to walk through, but there is light at the end of the tunnel.
The most important event right know is to schedule the surgery, so the doctor can determine the stage and grade.

In the mean time, try to focus on the positive things you have in your life right now.
Please keep us posted.

Double Whammy's picture
Double Whammy
Posts: 2259
Joined: Jun 2010

Glad you found us Chrismc, but not happy about your diagnosis. This is a very knowledgeable, caring, and kind group of women. We each have had different types, grades, and stages of endometrial/uterine cancers, yet we all share a common bond. I guarantee you, you will find the support you need here.

I was right where you are 2 years ago, 62 years old, and hit by the words no one wants to hear. Then the wait, the awful wait. And the fear of the unknown. And all of the what ifs.

So please come here with your questions and concerns. We don't think any of them are stupid or naive, because we've all asked them, or if we haven't, we've thought them.

I hope everything works out well for you. The cancer thing is out of your hands, but what is in your control is to focus on being as well and as strong as you can be to get you through this. You will be amazed when you look back on this time - we just have to get you through it.

Suzanne

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

I'm trying to be strong but is is really tough. Hope I don't sound like I am whining. I live alone and always did not mind it,but at a time like this I would very much like someone elese in this house with me. I don't want to take on the attitude of poor me and feel sorry for myself. I have done some things in my lifetime that some ask " how did you do that by yourself", but I have never faced something like this. Oh well, enough of that. I went shopping today and bought a new picture for my bedroom that says "Learn How to Sail in All Winds". Very appropriate for this time. Thanks for listening

Chris

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

Please do not feel you are whining. You have a very valid reason to feel the way you do right now. Let it out!

As someone else said, you came to the right place. We are here to support you and hear you, no matter what it is.

If you want to talk more, please feel free to email me at luisafayard@yahoo.com.

Stay well!

sunflash's picture
sunflash
Posts: 142
Joined: Aug 2011

I'm also glad you found us. Nobody can understand the fear and anxiety of having cancer until you've experienced it.
Sending prayers and comfort to you.....that your appointment today goes well and you hear good news from your doctor. Once you've talked it over and formulate a treatment plan you somehow find the strength to move forward.
You are stronger than you know........and someday, looking back on this, you'll understand that it takes enormous strength and courage to move after a cancer diagnosis.
But you WILL get through it, step by step, one day at a time.
Please let us know how your appointment went....there's strength in numbers and we're all behind you!

Take care.....

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

Just returned from my Gyn.appt.with results of ct scan and chest xray. He told me that I do have some enlarged lymph nodes but everything else was clear. He called Lehigh Valley Womans Cancer Center in Allentown Pa to get me an appt which is for Tues.He also scheduled a consultation appt with a radiological oncologist for monday in the local area. He said I can have the surgery in Allentown but the treatments if needed could be done locally. I know I will probably have to have radation and chemo but I can do this. At least I feel better at this point knowing nothing else showed up on ct scan but I am aware the surgery can tell a different story.
My doctor was so wonderful, he said this can be cured. He told me to take care of myself, get enough rest and eat properly to maintain my strength.
It is just so wonderful having a support system from the girls on this message boards. I just cannot thank you all enough.

Chris

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

I am glad everything went well.
Hopefully the surgery will be very soon.
Just follow your doctor's advice: rest and eat well to stay strong.
And yes, you can do it!

Keep us posted!

Double Whammy's picture
Double Whammy
Posts: 2259
Joined: Jun 2010

It sounds like the wheels are in motion and moving forward. Please take good care of youself and keep us posted.

Suzanne

txtrisha55's picture
txtrisha55
Posts: 422
Joined: Apr 2011

That is good news. yes, after surgery will tell more but it does lessen the worry some. This board is here for you when you need it. Keep us posted. trish

HellieC
Posts: 425
Joined: Nov 2010

It's good that you now have a plan. If you need us, we will support you all the way through.
If you're interested in healthy "anti cancer" eating, there is a good book called "Anticancer: a new way of life" by Dr David Servan-Schreiber. It is a very interesting book with lots of diet information.
Take care and look after yourself
Kindest wishes
Helen

ConnieSW's picture
ConnieSW
Posts: 536
Joined: Jun 2012

I found the worst period was between waiting for the biopsy results and having surgery. After that I had a schedule to follow and a job to do (defeat this thing trying to harm me). So get through that time with the help of the people here and then you can get on with recovery.

I, too, have struggled with weight all my life and guess what? I got UPSC, which tends to favor thin women. Go figure!

Hannah1
Posts: 61
Joined: Jun 2012

Hi Chris, Thank god everything is ok. I was dx with endometrial cancer in 2004,
had chemo and radiation and Here i am 8 years later. We can fight this. Just be
strong and take one day at a time. I will keep you in my prayers. Take care and
God bless.

Hannah1

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

I am also being tested for Lymphoma. Enlarged Lymph nodes and a small mass were found in my abdomen in an area where they don't believe it has anything to do with the Uterine cancer.I just can't believe I may have two cancers . I am having a ct guided needle biopsy of the lymph nodes on monday so I will know more.

Thank you for your support

Double Whammy's picture
Double Whammy
Posts: 2259
Joined: Jun 2010

I hope you don't also have lymphoma! I was flabergasted to say the least when I was dx'd with both endometrial and breast cancers at the same time! When I asked why, the answer was "I doubt you'll get a good answer to that". For my cancers, however, the risk factors are the same so it sort of made some sense. Really took the wind out of my sails, tho.

Sending hugs and prayers your way that this mass and those nodes have nothing to do with either uterine cancer or lymphoma, and that it's benign!

Hugs,
Suzanne

light42day
Posts: 61
Joined: Mar 2012

Hi Chris,

I sure hope you have good news when you have your test on Monday. I know how hard it can be to wait for tests and results. I was diagnosed with Endo cancer Stage 1. Grade 2 back in Jan. 2012. I had a Hysterectomy Feb 2012. I found out after surgery that I had a positive pelvic wash and had cells in my, pelvic area. I then had Chemo for 3 months and am believed to be cancer-free now! I'm 56 and overweight. I also blamed myself for getting Endo cancer at first but now I don't. It can happen to anyone. I'm sorry you have to through this living alone but there's lots of support out there for you. I joined a support group which really helps. Plus the great ladies here on this forum and other ones, too.

I know you can make it through this! I've been sort of fearful of cancer my whole life and going through chemo but I made it (with a lot of support from others,especially prayer). I hope that everything goes well for you!

Blessings,
Peg

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

Hugs and positive thoughts to you Chris!

Hannah1
Posts: 61
Joined: Jun 2012

Hi Chris, I have 3 kinds of cancer (uterine, breast, thyroid ) now it look like it metastasize
to my lungs. Pet/ CT scan showed a 10mm nodule. I just had a Ct guided biopsy last Thursday.
Won't know the result for the next 5 days. I need to be strong for my family and they very
supportive. They are always there for me so I need to fight this cancer. We all will fight this cancer.
I will be praying for you on Monday for your biopsy. Hope everything goes well. God bless

Hannah

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

Hannah1 thank you for your support. I will be praying for you also. Keep your thoughts positive and know that we are all rooting for you. Keep up the fight and God Bless You.

Chris

Northwoodsgirl
Posts: 201
Joined: Oct 2009

I am very sorry to hear of your diagnosis. I too was diagnosed with uterine cancer stage 2B in May of 2009. I thought that the waiting to have surgery was very hard. This is an excellent site to post questions and get emotional support for the journey you and your family are embarked on. It will be challenging but you can make it through and come out the other end of the journey strong and compassionate...but changed in a number of ways. The treatments to combat the side effects from chemo and radiation have improved over the years. Take it one day at a time. Please know that there is a "sisterhood" of women of all ages and backgrounds who have gone through what you are going through and will support you in our thoughts and prayers. Have faith and stay in the present moment...All of us have shared your same fears, anxiety and uncertainties. Please keep us posted on your journey.
(((HUGS))) Lori

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

Thank you very much Northwoodsgirl for your support. I do find it very comforting to talk with the women. No one knows what this is like unless they have been there.

sedonafree's picture
sedonafree
Posts: 8
Joined: Apr 2012

Hi Chrismc,
We are here for you. Also, take any support you can get from the people around you. They will surprise you with so much caring...don't be afraid to tell anyone, don't keep it a secret...let it out and let the love come back to you. Its all about YOU now.

One book that helped me when I was diagnosed was CAncer: 50 Essential Things to Do by Greg Anderson. You can get it on Amazon. I can't stress enough how important it is to get started on the right foot, with a positive attitude. This book helped me do that...it was the first one I read. You have to stay positive, because it works and also because to get scared, depressed and negative takes away from your body's healing power.

Oh, I was a IIIC, with 3 of 37 lymph nodes positive. I was hit with this when my doctor came to my bedside after surgery...but your attitude toward it makes a huge difference, because there is so much to do to get yourself well.

Cancer is a transitional process. Nothing is ever the same, but you can make a better future for yourself in spiritual and physical ways. The surgery I had was robotic, and healing was quick and after 6 weeks I felt better than I had in years.

Don't blame your weight. I also blamed myself a bit for not going to the doctor quick enough...but that is wasting your energy. Put your thoughts into going forward and winning this battle.

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

thank you very much for your encouragement SEDONAFREE, I really appreciate it. I will ck out that book you reccomended. I am trying to keep postitive with the help of some meds from my doc.Without the meds I was not doing well at all. I feel like a science experiment, getting picked prodded and tested almost every day this week. My surgery is tentively set for Sept 9th, but I still have more testing before that day. Just can't wait till this is all over.

Ro10's picture
Ro10
Posts: 1356
Joined: Jan 2009

Sorry you have to start this journey with us. Is your surgeon a gyn/ oncologist? I hope so. Waiting for the surgery is hard. Take it a day at a time. I hope your surgery shows you are an early stage. Feel free to ask any questions you may have. In peace and caring.

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

Well tomorrow is my appt with the Gyn/Onc to find out results from the needle biopsy. He does suspect that I have Lymphoma. I hope the tentitve surgery date of the 10th for the hysterectomy will become definite. I have to get this cancer out of me. It seems as if it has been taking too long and I am getting very nervous about that. Not in the best of spirits all weekend. I need answers already. And I need this taken care of.

sedonafree's picture
sedonafree
Posts: 8
Joined: Apr 2012

Hi, and I'm hoping you get good news. Also hoping the surgery date will be set ASAP. I sympathize with all the waiting and worrying you have been having to go through. It makes one feel so helpless to not know what is happening with everything.

Try to stay calm and take it one day at a time if you possibly can. Take deep breaths, silly as that sounds but it gives you something to focus on.

I hope someone went with you today to get your results. Two heads are better than one in these situations.

chrismc's picture
chrismc
Posts: 42
Joined: Aug 2012

Went to my gyn/onc appt yesterday and finally got some answers. The first thing he told me is that I do have Lymphoma, B-cell follicular small cell low grade and it was found very early due to the scans for the uterine cancer. He said that means there was no spread of the Uterine cancer to that area. I am scheduled for DaVinci Robotic Hysterectomy on Sept 26th. I will have one appt with a Medical Onc before the surgery due to the Lymphoma. Can't wait to at least get the hysterectomy behind me and hope that there are no surprises in the staging after surgery. Then I will have to deal with the Lymphoma.

pakb56
Posts: 141
Joined: Jan 2012

Welcome to the geoup. I hate welcoming new members gut gladly do so because I know you will receive much needed aupport and aadvice from these wonderful women. Remember, you do not walk this journey alone... you follow in tghe footsteps of those that came before you, walk with the rest of us and lead the way for others that follow.
Take care, Pat

emmerrald
Posts: 3
Joined: Sep 2012

Hi Chrismc and everyone else

Had the biopsy and was just diagnosed with Uterine Cancer. Scared as hell! Have to go for blood work and chest x ray. Appointment with Onc/obgyn in 1 week for results and what will have to be done. I have a fantastic husband and family for support. My older son introduced me to this website and told me that it may help talking to those women who are going through or have already gone through Uterine Cancer! Was reluctant but thought why not? It certainly won't hurt to get different perspectives from others. So, ladies, I am sure you will be hearing a lot from me throughout this unwanted journey but I am also a great listener as well. In advance, thank you to all who can give any advice for what I am about to go through.

emmerrald
Posts: 3
Joined: Sep 2012

Thank you Pat, I appreciate the encouragement and support.

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